`
I had a long talk with my nephrologist, well a half hour but that's long for him. I aksed him how i was going on this treatment because I know what the levels are and they are not all that great.
I told him I know that the docs don't like to speculate about the possible outcomes but really what's the go.
He said "That's like asking me to say what all the outcomes of chess game are after the first move. Boris Spatski could but not me".
I did find this out.... and keep in mind that this may change.
We talked about my kidneys are currently half crap. that is to say they are doing 40 to 50% of the effective job they should be doing.. The treatment I'm on (Pontecellie Protocol) , if it causes change the change will be in any of three time periods 1. Now. while in the treatment. 2. Immediately after word, 3. within a couple of months of the end of treatment, so we won't talk about future treatments until the new year (maybe Feb March).
I may be doing dialysis in 5 to 10 years if nothing else works. I'm a possible prospect for transplant now because of my age but in 10 years I won't be. He has a bunch of ninety year olds that are dong quite nicely on Dialysis so not to worry and that the science is getting better every year.
He was firm in saying that although the current treatment has not made significant change at the moment we won't know till later and that there are other treatments lined up as well.
Now to report what doc Schoozenbootzen said yesterday after looking at both my bone marrow and chemistry results. " I see stability" " Although there is not significant improvement in your kidney chemistry there is also no further decline, You have stopped getting worse" . WoooHooo I'll take any good news including at least you aren't getting worse. I find this to be hilarious but I do have a big black humour reservoir. He went on to say that my MyleoFibrosis is stable as well still there but not causing grief and not screwing up my blood counts to much.
I'm reflecting now to all those teachers that said "Chris could do so much more but he performs at an average level." My bone marrow has adopted my style and is performing at an average level. (I guess technically not even average cause that would be like all you people with fully functioning blood cells). Anyway I'm puttering along getting Intragamm each month and trying to be a bit fitter.
I've been going to aqua exercise class now for three weeks.will probably start in the gym in the new year. its good. And I have a lot of projects planned for around the house so should be able to keep fit that way too.
Oh and that chart I made up of the doses I thought I would get while in Greenslopes. I got over 50% of it right those I missed were very close. So I'm pretty proud of my knowledge about my own insulin production.
More later
Chris
Saturday, December 13, 2014
Sunday, November 16, 2014
How odd
The ride over was quiet and without any traffic jam. Lots of road blocks on the side streets but no problem getting to Roma Street station. There is a whole contingent of Police in the Transit centre but no excitement. I can't see any world leaders taking a bus out of town.
My life is very interesting...
Looking forward to seeing Bluey at 3:00pm today.
More later
Chris
Saturday, November 15, 2014
More on bored people
More on what bored people do in the hospital
They have a coffee in the coffee shop downstairs and they up date their Blog.I reckon nurses don't get as much praise as they deserve. The job has become so much about paper work and getting all the boxes ticked and yet they still seem to have time to be genuinely interested in your life as well of course of your wellbeing. I have met and re met some outstanding nurses in this year of popping into GPH. They are all great. they keep their heads as the pressure builds they are pleasant and explain what's going on and they stick to the rules even when its inconvenient for some prednisone boys. I just can't say enough good things. Thanks to the GPH nurses and to all the staff. And thanks to my other nursing pals especially ones that left other careers to join nursing!
more later
Chris
Friday, November 14, 2014
Going good
Going good with my Insuin and blood sugar levels. today I start the reduced Prednisone pills and at this time last cycle my readings were still over the top but this morning I was well within range. So may get to leave on Sunday.
Had a great visit from Wal and Mary Ellen last night. They drove in after work and visited for a couple of hours. Good yarns, catch up and laughs thanks guys. Wal told a story on Pat Ehrich about figuring out that a horse is pregnant.
Hey Jo got any other daughters looking like that?
Good eh?
more later Chris
Had a great visit from Wal and Mary Ellen last night. They drove in after work and visited for a couple of hours. Good yarns, catch up and laughs thanks guys. Wal told a story on Pat Ehrich about figuring out that a horse is pregnant.
Hey Jo got any other daughters looking like that?
Good eh?
more later Chris
Thursday, November 13, 2014
What Bored people in hospital do
Well maybe no what ALL people do, but what I do.
Ive been looking at these cupboards and my lst room had the same problem. the two doors were out of alignment the top door tilted up and the bottom tilted way down. As I always call my multitool I adjusted them and now they look like this
Its what I do. But its really what I do on Prednisone.
more later
Chris
Ive been looking at these cupboards and my lst room had the same problem. the two doors were out of alignment the top door tilted up and the bottom tilted way down. As I always call my multitool I adjusted them and now they look like this
more later
Chris
Its all about the numbers
Insulin Units, BSL (blood Sugar levels), Rb(Red blood cells), Wcc (all the white cells), Neutrafils (the best of the whites, Is to the whites what a buttery oaky chardy is to white wine), Creatin, Albumen.... and on and on.
If the numbers come out right I get to go home sooner! I'm doing better this time because we have the records of last time we did this exact procedure. Here's my guess at my doses this time around.
If the numbers come out right I get to go home sooner! I'm doing better this time because we have the records of last time we did this exact procedure. Here's my guess at my doses this time around.
As you see they have been changed already! but the BSLs are better this time! So I'm on track for early release.
But release to what? We have to see how Bluey can get to here through the city or around because its all in G20 mode here and lots of roads have been closed for the weekend.
We'll get it figured out and I'll get out sometime.
more later
Chris
Monday, November 10, 2014
Just chill'n
Waiting in the hotel before I check into the Green slopes Country club. Actually its the Green Slopes Private Hospital. some time later this afternoon I go in to start my third and last round (hopfully) in the Pontecelli Protocall for my kidneys. I will get 1000 mgs of Prednisone intraveniously each of three days then 50 mg oral. each day after that I will be in the hospital until they get my insulin balanced after the three days and that took 3 whoole days last time. I'm hoping that with the records of the doses last time, where we were just guessing the levels and then making the adjustments in the next dose window, we may get the jump on getting the levels right sooner.
Anyway I've already set out a chart of new levels for the whole 8 days I may be here and we'll see how I do at getting them right. I of course don't get to make the decision my wonderful Endo team leader Dr Who is in charge of that. or leaves it to the registrar. We'll see how acurate I've been.
I'll have lots of time to blog so watch your inboxes if you've set up notifications and if not... check back often.
Anyway I've already set out a chart of new levels for the whole 8 days I may be here and we'll see how I do at getting them right. I of course don't get to make the decision my wonderful Endo team leader Dr Who is in charge of that. or leaves it to the registrar. We'll see how acurate I've been.
I'll have lots of time to blog so watch your inboxes if you've set up notifications and if not... check back often.
Saturday, November 1, 2014
Spooktacular Night talk
this is the text of a talk I was supposed to have given last night but circumstances made it not happen. I'd like to share it with you.
Hi My name is Chris Olin and part of what this evening is about Blood Donor awareness so…
Hi My name is Chris Olin and part of what this evening is about Blood Donor awareness so…
·
Hands up how many folks here think
that the blood you donate is used almost entirely for trauma patients, Road
accidents etc.?
·
Hands up who thinks that most
of it is used for surgical patients?
·
Hands up who thinks Obstetrics,
Othorpedics and other medical uses takes most of the blood?
·
!!!!!
·
The biggest single use of blood
from the Red Cross is cancer patients! Yep people like me take 34% of the blood
and blood products.
·
Next is 19% for other causes of
anemia
·
18% for Surgical, 13% for other medical patients, 10% for Orthopedics, 4 % for Obstetrics
·
And last but still important 2%
of donated blood products goes to trauma patients!
Okay but what are people like me, using all
that blood for?
7 years ago I had a blood cancer and was
offered a Stem Cell Treatment also called a bone marrow transplant. My immune
system was compromised as a result.
Hands up who thinks your immune system is
in your Liver?
Hands up who thinks it in your Spleen?
Hands up who thinks your immune system is
that hot new feature you got with your HI LUX turbo diesel?
For those that sat on your hands just now
you are right! Its none of those.
Your immune system is a collection of blood
cells wizzing around your body created from your bone marrow. So when something
goes wrong with your immune cells you need to replace the missing cells with
donated cells.
I’m a white wine drinker but from time to
time I need red…… blood cells. I’ve also had platelets in the past. Now, every month, I get Intragam
also called Imun-Oh-glob-lin-G or IgG. Tonite
only I’m calling it Immune to gob-lins!
This, from what I can gather, is the
antibodies in a donated blood product that has been distilled down into a clear
liquid that helps me fight infections.
It takes a large number of donations to get
the little bits that make up the Immune To Gob-lins I need.
So if you have given blood at any time, I thank you from the bottom of my heart for
my continued great health.
If you haven’t given yet, think about this,
1 in 3 people,
look
around you! 1 in 3 will need a blood product at some point in their life. But
only 1 in 30 people currently donate blood. So why not make a pledge tonight to
roll your sleeves up and give.
To finish … I, like Dracula, look forward to someday getting a little blood
from all of you.
more later
Chris
Monday, September 22, 2014
Mixed Feelings
Yesterday I was pretty down about being here and it made me introspective. Today I'm quite elated (bluey is already on the road and my stats are good to go) but I'm still introspective.
I was walking another 5 laps to get my sugars good for the before lunch test and I stopped to chat to a fellow in a bed in a quad ward. He's there by himself and that's like me except the large room makes it so obvious that he's alone. Anyway I teased him that with a room so big they could at least give him a lounge suite, big screen TV and a pool table.
We talked and Noel told me a bit about himself. 4th round of cancer, got home last time for only three days of remission before he was back in here. He's doing radiation and chemo but "nothings working this time" He was pretty matter of fact about his prospects and had a very calm demeanour. I shook his hand and told him I may see him when I'm next in on November 10th. Maybe not.
I'm put in mind to tell you my patented method to getting through a hospital visit. I did this years ago and I won't look up the list but you can, its somewhere in the back chronicles Feb,Mar,April 2007 maybe. I'll do it fresh.
1. Get off your ass. even if it's only a walk to the door of your room. Do it once a day at least.
2. Wear your own jammies. Its depressing being in those hospital gowns. If they say it has to be the weird gowns....buy your own in bright colors.
3. Even if you have to wear jammies all day change in the morning have a set for night time and set for daytime. Serves several purposes. You feel cleaner even if they are just last nights ones, its moving from day to night. You are marking progress! People notice that you are making an effort and they are encouraged and then they encourage you. "Get up out of the bed your lazy slob and get dressed!" My mother voice in my head.... but she never said it like that, more like "Don't you think you would feel better if you got up and changed". Thanks Mom.
4.Wear a loud shirt if you can I recommend Mambo you can still get them online. The louder the better. It absolutely works. Bright on the outside bright on the inside. The benefits are many fold:
-you make people smile that makes you smile.
- you feel as if everyone (they are) is looking at you and that means that you are being monitored and kept safe.
-Little kids visiting are made to laugh and smile and it makes their scary trip to the hospital better and that makes you feel better.
-It opens up a conversation with nearly everybody and that's one more moment that you are thinking about something else.
5. Be especially nice to the staff . Smile and chat to the cleaners, the catering staff and especially the nurses. They don't always have time to chat but when they do they can be most unexpected in their amusement value. Besides they have the keys to Kingdom. Cinnamon on your porridge, making sure your favourite herbal tea is on the trolly, extra towels and mostly just smiles.
6. Always and I mean ALWAYS order the soup! It can be a sauce for the main dish. It may be the only thing you want to eat. it may be that its just the extra nourishment your need to get strong and get out.You don't have to eat it but it there is you need it.
more later
Chris
I was walking another 5 laps to get my sugars good for the before lunch test and I stopped to chat to a fellow in a bed in a quad ward. He's there by himself and that's like me except the large room makes it so obvious that he's alone. Anyway I teased him that with a room so big they could at least give him a lounge suite, big screen TV and a pool table.
We talked and Noel told me a bit about himself. 4th round of cancer, got home last time for only three days of remission before he was back in here. He's doing radiation and chemo but "nothings working this time" He was pretty matter of fact about his prospects and had a very calm demeanour. I shook his hand and told him I may see him when I'm next in on November 10th. Maybe not.
I'm put in mind to tell you my patented method to getting through a hospital visit. I did this years ago and I won't look up the list but you can, its somewhere in the back chronicles Feb,Mar,April 2007 maybe. I'll do it fresh.
1. Get off your ass. even if it's only a walk to the door of your room. Do it once a day at least.
2. Wear your own jammies. Its depressing being in those hospital gowns. If they say it has to be the weird gowns....buy your own in bright colors.
3. Even if you have to wear jammies all day change in the morning have a set for night time and set for daytime. Serves several purposes. You feel cleaner even if they are just last nights ones, its moving from day to night. You are marking progress! People notice that you are making an effort and they are encouraged and then they encourage you. "Get up out of the bed your lazy slob and get dressed!" My mother voice in my head.... but she never said it like that, more like "Don't you think you would feel better if you got up and changed". Thanks Mom.
4.Wear a loud shirt if you can I recommend Mambo you can still get them online. The louder the better. It absolutely works. Bright on the outside bright on the inside. The benefits are many fold:
-you make people smile that makes you smile.
- you feel as if everyone (they are) is looking at you and that means that you are being monitored and kept safe.
-Little kids visiting are made to laugh and smile and it makes their scary trip to the hospital better and that makes you feel better.
-It opens up a conversation with nearly everybody and that's one more moment that you are thinking about something else.
5. Be especially nice to the staff . Smile and chat to the cleaners, the catering staff and especially the nurses. They don't always have time to chat but when they do they can be most unexpected in their amusement value. Besides they have the keys to Kingdom. Cinnamon on your porridge, making sure your favourite herbal tea is on the trolly, extra towels and mostly just smiles.
6. Always and I mean ALWAYS order the soup! It can be a sauce for the main dish. It may be the only thing you want to eat. it may be that its just the extra nourishment your need to get strong and get out.You don't have to eat it but it there is you need it.
more later
Chris
Sunday, September 21, 2014
Don't get around much anymore
I'm feeling the weight of time passing slowly today. ...
First the good news:
I did get out yesterday and I atempted what few men have EVER achieved but I can't tell you yet be cause its a secret from Bluey. I also got me some great shoes from Gilmours Comfort shoes. Another pair of SAS shoes they are super durable and they look good and above all are so comfortable and I have been trying to get them for a few months but could not get them online in Australia. I also got some hair product for Joyce and got her a new iPad cover. Walked the length of Garden City mall and cabbed back in time for arvo rounds, so all good.
This morning has gone slowly with several walks around the halls.
Its two long cooridors with rooms on the outside and utility rooms in the center with several cross halls and if I figure 8 back and forth and do five laps it adds up to 1 kilometer.
No not about one kilometer but exactly one kilometer. the carpet tiles are excatly .5 of a meter and I have counted the lap several times and done the math. 1000 meters. I do it at least twice a day and I've done it three times already today and its only 2.
The good news is my sugars are down! between the cessation of the mega Prednisone, massive walks and bombing with insulin I've got two good readings in a row but today's smaller dose of Prednisone is kicking into my sugars as we speak so we will see in a couple of hours if the massive (neuclear deterent size ) dose of insulin I got at lunch takes care of the anticipated rush.
In fact lets check my sugars now for fun.
Heres the video and the BSL has dropped even more so that great.
I will continue this as I upload the video.
Anyway I got a real nice letter for the wifes's ex boss. Saying that she and her charming sailor husband missed me today at the Tour De Bay. It was nice but it landed right at the time I was walking the halls and thinking about people that won't be getting out of the hospital Tuesday morning like I will be. It made me think about Mazlow's heiarchcy of needs. My base needs are pretty looked after here. I don't have to cook for me or Bluey, it just arrives and pretty much on exactly the right time, (remember that us Diabetics need a routine) its nutritions but not veryadventurous its perfect for this story . I get a good room with my own toilet shower etc. They check on me every two hours and take my vitals and record it so that any patterns can be observed, again perfect for this story. The staff are very caring and like to chat a bit and to see how I am but they all have a wonderful life outside of this place of work so aren't likely to get very deep into my issues, again perfect for this story.
This story being that: my needs, as defined by this guy in the past, are being toatally met! But the higher needs are not. There are no good stories with my dinner, nice wine to lend a warmth, no good talks with friends and above all that ....companionship from my best friend. I can hold out another 24 hours till she gets here but its just a bit slow right now.
I feel a bit bad that I'm complaining about this because its for my own good in the long run. It won't be for much longer and after one more round this should be over for good if it works. Its just that this is the third time I've been in this hospital this year and I know for sure I'm coming back on November 10th so I'm looking at all the other poeple that will remain and wonder if this is my fate for more than a wee visit from time to time. Makes me think.
A glass of crisp wooded (yes I'm oldfashioned) Chardy on the deck in the afternoon light with Bluey and Floyddie would be most welcome.
more later
Chris
First the good news:
I did get out yesterday and I atempted what few men have EVER achieved but I can't tell you yet be cause its a secret from Bluey. I also got me some great shoes from Gilmours Comfort shoes. Another pair of SAS shoes they are super durable and they look good and above all are so comfortable and I have been trying to get them for a few months but could not get them online in Australia. I also got some hair product for Joyce and got her a new iPad cover. Walked the length of Garden City mall and cabbed back in time for arvo rounds, so all good.
This morning has gone slowly with several walks around the halls.
Its two long cooridors with rooms on the outside and utility rooms in the center with several cross halls and if I figure 8 back and forth and do five laps it adds up to 1 kilometer.
No not about one kilometer but exactly one kilometer. the carpet tiles are excatly .5 of a meter and I have counted the lap several times and done the math. 1000 meters. I do it at least twice a day and I've done it three times already today and its only 2.
The good news is my sugars are down! between the cessation of the mega Prednisone, massive walks and bombing with insulin I've got two good readings in a row but today's smaller dose of Prednisone is kicking into my sugars as we speak so we will see in a couple of hours if the massive (neuclear deterent size ) dose of insulin I got at lunch takes care of the anticipated rush.
In fact lets check my sugars now for fun.
Heres the video and the BSL has dropped even more so that great.
I will continue this as I upload the video.
Anyway I got a real nice letter for the wifes's ex boss. Saying that she and her charming sailor husband missed me today at the Tour De Bay. It was nice but it landed right at the time I was walking the halls and thinking about people that won't be getting out of the hospital Tuesday morning like I will be. It made me think about Mazlow's heiarchcy of needs. My base needs are pretty looked after here. I don't have to cook for me or Bluey, it just arrives and pretty much on exactly the right time, (remember that us Diabetics need a routine) its nutritions but not veryadventurous its perfect for this story . I get a good room with my own toilet shower etc. They check on me every two hours and take my vitals and record it so that any patterns can be observed, again perfect for this story. The staff are very caring and like to chat a bit and to see how I am but they all have a wonderful life outside of this place of work so aren't likely to get very deep into my issues, again perfect for this story.
This story being that: my needs, as defined by this guy in the past, are being toatally met! But the higher needs are not. There are no good stories with my dinner, nice wine to lend a warmth, no good talks with friends and above all that ....companionship from my best friend. I can hold out another 24 hours till she gets here but its just a bit slow right now.
I feel a bit bad that I'm complaining about this because its for my own good in the long run. It won't be for much longer and after one more round this should be over for good if it works. Its just that this is the third time I've been in this hospital this year and I know for sure I'm coming back on November 10th so I'm looking at all the other poeple that will remain and wonder if this is my fate for more than a wee visit from time to time. Makes me think.
A glass of crisp wooded (yes I'm oldfashioned) Chardy on the deck in the afternoon light with Bluey and Floyddie would be most welcome.
more later
Chris
Friday, September 19, 2014
Got a hall pass
Convinced my two doc teams AND the nursing staff to get my Intragamm into me this morning and let me go out of the hospital for the arvo.
The Boffin was reluctant when I said I wanted to go out to go shopping. I heard two stories...
Another bloke on Prednisone went out shopping for a car and bought two because it was a better deal! And another bought 800.00 in tools from bunnings that he didn't really need.
This last one is more me but I assured him that the things I want have been on my list for a while. New shoes from the Children of the Revolution, SAS brand and I can't seem to get them online and I'm getting exactly the same shoes as I have now they lasted years, are still comfortable but have worn down soles. An ipad cover for Bluey and a hair product she needs and can't get in HB. and the real reason I'm making this escape to get a pressie for bluey.
News flash the IGG wan't booked and the blood bank will have to get the Dr. order then get it typed and then get it over here. So this trip may be off. Maybe I'll do it tomorrow. Sigh
I can shop just as well on Saturday but ...I Had A Plan! oh well. this is my life now. Now where's that lemon juicer, I've got lemonade to make.
more later
Chris
The Boffin was reluctant when I said I wanted to go out to go shopping. I heard two stories...
Another bloke on Prednisone went out shopping for a car and bought two because it was a better deal! And another bought 800.00 in tools from bunnings that he didn't really need.
This last one is more me but I assured him that the things I want have been on my list for a while. New shoes from the Children of the Revolution, SAS brand and I can't seem to get them online and I'm getting exactly the same shoes as I have now they lasted years, are still comfortable but have worn down soles. An ipad cover for Bluey and a hair product she needs and can't get in HB. and the real reason I'm making this escape to get a pressie for bluey.
News flash the IGG wan't booked and the blood bank will have to get the Dr. order then get it typed and then get it over here. So this trip may be off. Maybe I'll do it tomorrow. Sigh
I can shop just as well on Saturday but ...I Had A Plan! oh well. this is my life now. Now where's that lemon juicer, I've got lemonade to make.
more later
Chris
Thursday, September 18, 2014
Less Medical More Philosophical
First off can I say that I love a word that has not one, but two f sounds from the ph spelling!
First off although the dessert pocket is dead. and I quote myself to my Nephew Little Bro who had a moment of silence for my dessert pocket and this is also for Regs who said "Noooooooooooooooooo, I grew up with dessert pocket stories"
Wait a minute I already did this quote in the last blog entry. Predno Brain I guess. Anyway in answer to all that I present arvo tea today a special treat.
First off although the dessert pocket is dead. and I quote myself to my Nephew Little Bro who had a moment of silence for my dessert pocket and this is also for Regs who said "Noooooooooooooooooo, I grew up with dessert pocket stories"
Wait a minute I already did this quote in the last blog entry. Predno Brain I guess. Anyway in answer to all that I present arvo tea today a special treat.
It looks huge but in reality its just bite size and exact one serve of carb which is what I'm allowed for a snack.
I'm down in the coffee shop blogging and chilling and thinking that I'm going to be here one more time in two months to start this melthyl Prednisone one last time, for this Ponticelli Protocol. Hopefully this fixes up my kidneys and they pass more creatin and stop leaking protein. I already understand that my treatments for the Myleo Fibrosis are at slight odds with keeping my Kidneys healthy so I may be doing this back and forth for a long time. the docs are vague on the future. " Lets just finish this protocol and we'll see..." " If this doesn't achieve the improvement in the kidney function there are other treatments" " But we know that one we tried already caused un wanted side effects"
So even if the prednisone makes me a bit agitated, (Watch the retaining wall get fixed up tout suite) its better than dialysis, or worse. I'm pretty lucky I'm not tied to a bed, I don't feel sick just a bit spacey. And the biggest side effect is that I'm a little chatter box and talk to every one and am bright (mambo shirted) and happy and they respond with nice support here. The nice lady in charge of the catering up here on the floors brought me my own vial of cinnamon for my porridge.
-------Remember these five dashes, they might even be called em s my scrabble friends will no doubt correct me on that. Anyway they mean a separate discussion from the main body of the thesis.
--------Hospital food the best thing that can be said is 'it keeps you alive' this food is better then some but its hard feeding all these patients with diet special needs and all at the required times because we all have medication that needs to be on time and that is related to getting the food on time. Some things are even good and I have discovered that you can right on the menu special requests and you may get them, My diabetes diet comes with ticks boxes for hot porridge or a range of cold cereals, toast in a range of breads, a range of yogurts, canned and fresh fruit but my choice of porridge gets boring so I wrote eggs sauages and toast one day and got it! Any way I wrote cinnamon last time I was here and got a note that it was not available so ask Simone if it was possible that this huge kitchen had no cinnamon an hour later she walks in with sugar cinnamon and plain cinnamon, Lengendary!
But I miss my best friend and she misses me. Love you bluey!
and I my Floydd, my dog!
I just now got a text from bluey with ahd picture of Floydd after he played and went in the dam. Damn he looked cute and I know the photographer is cute.
This right here is a totes beautiful eg of My Cosmic Life. I say I miss them and there they are, on my phone! This is a wonderful moment and I don't care if its Predno fired.
I'm going to miss the Tour de bay
I hope I'm not going to miss the Mentor Program special event at the botanic gardens.
And I'm going to be able to get back to the Lesser Wall of Chris and the Stairway to ...the back door.
More Later
Chris out.
Wednesday, September 17, 2014
Back on the Juice
I'm back in Hospital in Brisbane getting intravenous Prednisone at 20 times the amount I have done before and you all remember what it does to me. Hang on babies we are in for a ROUGH ride.
I got the first of three giant doses this morning at 8:00am and its 4:00pm and I haven't felt too bad at all but there may be a cumulative effect so we will see tomorrow but there may also be (I hope) a threshold for the crazy factor.
I'm already hungry as that is a side effect and my blood sugar has risen as expected but the Endo team have me jacking more insulin then the usual so we may have a handle of that but they see me four times a day to check my blood test and make a decision about the next dose. I'm really lucky I have some great docs and while at hospital I have Registrars, Interns, Residents and Students as well. This time I'm getting them in small doses they haven't been traveling in packs but so far I've seen one renal and three endo docs.... today! I'm getting my moneys worth.!
I pay via my health fund that I got when we first moved here so I've been paying in for 17 years and now I'm getting the support. Anyway we get full cover for a private room and three months ago I got a bed in a quad room :( and last time I got a single with a shared toilet :| and this time I'm in one of the carpeted, including toilet, single rooms :). Next time I may actually get a room with a view ;) but I'm happy as a clam now cause I have great care.
Speaking of great care I just got a visit from The big Boffin AND his Registrar AND His resident!! They travel in packs again! Good review of all my levels and they are good or heading in a good direction. Except the blood sugars. The Endo team have that in hand I believe. We talked about the end of this little adventure and its up to the Endos to decide but they think Monday. The longer stay is because I'm going to be doing a month of my smaller dose of Prednisone and we have to get the dose for that right first. I'm to be released if we get the balance started on Saturday ( will still be messed up by the Friday IV Pred), then the Sunday balance near perfect then home ward bound. Bluey was very disappointed as we had thoughI would get out on Saturday. but she has rebooked to come down on Monday.. Cross your fingers.
I'm a bit wired so I've been walking the ward in my fish pants and my best Mambo shirt, the one with the skeleton on it looks like i'm wide open,on show. Lots of comments and I'm having some chitchats as I walk so that's good.
My Nephew Little Bro has been in touch and says he had a moment of silence for my dessert pocket. People please don't despair the dessert pocket was there when I needed it . I told him...
Have to go do my pre dinner blood test and get the dose sorted as I need to be ready for the dinner trolly cause....
Nothing stands between me and my dinner when I'm in the 'Sone'
More later
Chris
p.s. Next post will be on the bigger picture as I had a long talk with the Boff about what may happen.
I got the first of three giant doses this morning at 8:00am and its 4:00pm and I haven't felt too bad at all but there may be a cumulative effect so we will see tomorrow but there may also be (I hope) a threshold for the crazy factor.
I'm already hungry as that is a side effect and my blood sugar has risen as expected but the Endo team have me jacking more insulin then the usual so we may have a handle of that but they see me four times a day to check my blood test and make a decision about the next dose. I'm really lucky I have some great docs and while at hospital I have Registrars, Interns, Residents and Students as well. This time I'm getting them in small doses they haven't been traveling in packs but so far I've seen one renal and three endo docs.... today! I'm getting my moneys worth.!
I pay via my health fund that I got when we first moved here so I've been paying in for 17 years and now I'm getting the support. Anyway we get full cover for a private room and three months ago I got a bed in a quad room :( and last time I got a single with a shared toilet :| and this time I'm in one of the carpeted, including toilet, single rooms :). Next time I may actually get a room with a view ;) but I'm happy as a clam now cause I have great care.
Speaking of great care I just got a visit from The big Boffin AND his Registrar AND His resident!! They travel in packs again! Good review of all my levels and they are good or heading in a good direction. Except the blood sugars. The Endo team have that in hand I believe. We talked about the end of this little adventure and its up to the Endos to decide but they think Monday. The longer stay is because I'm going to be doing a month of my smaller dose of Prednisone and we have to get the dose for that right first. I'm to be released if we get the balance started on Saturday ( will still be messed up by the Friday IV Pred), then the Sunday balance near perfect then home ward bound. Bluey was very disappointed as we had thoughI would get out on Saturday. but she has rebooked to come down on Monday.. Cross your fingers.
I'm a bit wired so I've been walking the ward in my fish pants and my best Mambo shirt, the one with the skeleton on it looks like i'm wide open,on show. Lots of comments and I'm having some chitchats as I walk so that's good.
My Nephew Little Bro has been in touch and says he had a moment of silence for my dessert pocket. People please don't despair the dessert pocket was there when I needed it . I told him...
In the past there was a time for titans.... a time for our heros to be larger than life but there comes a time when we have to put away the giant organs and face real life. .... the Dessert Pocket Had To Go.I'm working with my diet 2.0 and its going to be a great life and I will eat dessert again but just not as we have known it.
Have to go do my pre dinner blood test and get the dose sorted as I need to be ready for the dinner trolly cause....
Nothing stands between me and my dinner when I'm in the 'Sone'
More later
Chris
p.s. Next post will be on the bigger picture as I had a long talk with the Boff about what may happen.
Monday, August 25, 2014
What a nininy
Okay its not quite a hypo bui because it was only 4.6 but it is the lowest I've been and its late at night with no more meals for hours so its a bit scary. I hope I handled it properly. I went ahead and had my long term Insuin dose before bed as that take hours to act and I also had one serve of Carbohydrate. I'll check later then go to bed
I thought I would take the dog out for his last chance before bed and he went walkabout to the neighbours! I had to walk across the field in the dark, whispering his name. Of course its dead still tonight so I didn't want to wake any of the neighbours by yelling. My whistle is so weak that it works a treat in this situation as he can hear it but its not loud. Anyay he came back and now I am fully wide awake and slightly anxious So thought I would blog.
My levels have smoothed out even more since being home and they have dropped into the taget range and are approaching normal. 4 is the bottom of the normal scale. My alarm goes off at 3.9 and 2 is dangerous. So to come from an average of 9 to 4.6 is an eye opener but not terrible.
It's propbaly safe to go back into the blood testing waters so will sign off now
more later
Chris
I thought I would take the dog out for his last chance before bed and he went walkabout to the neighbours! I had to walk across the field in the dark, whispering his name. Of course its dead still tonight so I didn't want to wake any of the neighbours by yelling. My whistle is so weak that it works a treat in this situation as he can hear it but its not loud. Anyay he came back and now I am fully wide awake and slightly anxious So thought I would blog.
My levels have smoothed out even more since being home and they have dropped into the taget range and are approaching normal. 4 is the bottom of the normal scale. My alarm goes off at 3.9 and 2 is dangerous. So to come from an average of 9 to 4.6 is an eye opener but not terrible.
It's propbaly safe to go back into the blood testing waters so will sign off now
more later
Chris
Friday, August 22, 2014
Latest news
I'm home in Hervey Bay!
docs got my levels close to balanced and not spiking up and down so was able to get out this morning. Flew home at noonish and now im sitting with Floydd and Bluey enjoying (?) the rain. Drop is on and we are making Pumpkin soup cause its that kind of day.
So to bring you up to date. I'm a full on insulin dependant diabetic until futher notice. I'm going this direction beacuse they might be able to figure out tablets for me but by the time they get it sorted I'll be going back on Prednisone and that messes up the doses so I might as well go on to insulin now as I will have to in a few weeks anyway. I have insulin pens and a new test meter that has a log book. The big change is that I'm really going to have to watch my food. I need to be eating consistently the same amount of carbs at the same time and take my insulin at every meal and before bed at the same time. That may be tricky but I have to do it,
They are stilll looking at my Potassium levels and I had to take this concoction that tastes and fell like drinking half water half chalk. Blood test Monday shoud tell us if the crap drink worked.
I have to do this all again in 4 weeks
I swing from the Cyclophosfomide to Prednisone and it starts with three days of Intravenous Pred and the Endochronologist Dr, Who wants toe be around to halp me fix the new levels. of insulin. I'll have to be in hospital from Sept 16 to and including the 19th.
In the meantime my GP and I will be watching my tests and adjusting little bits to get me sorted till Sept.
more later
Chris
docs got my levels close to balanced and not spiking up and down so was able to get out this morning. Flew home at noonish and now im sitting with Floydd and Bluey enjoying (?) the rain. Drop is on and we are making Pumpkin soup cause its that kind of day.
So to bring you up to date. I'm a full on insulin dependant diabetic until futher notice. I'm going this direction beacuse they might be able to figure out tablets for me but by the time they get it sorted I'll be going back on Prednisone and that messes up the doses so I might as well go on to insulin now as I will have to in a few weeks anyway. I have insulin pens and a new test meter that has a log book. The big change is that I'm really going to have to watch my food. I need to be eating consistently the same amount of carbs at the same time and take my insulin at every meal and before bed at the same time. That may be tricky but I have to do it,
They are stilll looking at my Potassium levels and I had to take this concoction that tastes and fell like drinking half water half chalk. Blood test Monday shoud tell us if the crap drink worked.
I have to do this all again in 4 weeks
I swing from the Cyclophosfomide to Prednisone and it starts with three days of Intravenous Pred and the Endochronologist Dr, Who wants toe be around to halp me fix the new levels. of insulin. I'll have to be in hospital from Sept 16 to and including the 19th.
In the meantime my GP and I will be watching my tests and adjusting little bits to get me sorted till Sept.
more later
Chris
Tuesday, August 19, 2014
What do you do while you are waiting for balance
You talk to to your sister on facetime/skype. She can amuse you by putting her SIM into her new phone. Normally a task for a five yearolds fingers and eye sight but as we get on a bit it becosming entertainment. the actually funny part was holding up the SIM carrier to the camera and making it face your face and then launching into Grover's "near" and "far". I nearly choked I was laughing so hard, thanks Melissa (two s's one ele, two s's one ele, I might actually have this spelling thing now).
You can marvel at how many doctors travel in packs now. My Endo team is a pack of three. clearly I scare the Big Boffin because yesterday his team was one other today he walks in with three others!
The staff here are all in uniforms blue for cleaners, blue stipes for nursing, red strips are pharmaphcy I think. even the doctors are in a uniform of sorts long sleeve dress shirt pipstripes, tie, dress pants, the female doctors are a breath of fresh air. in vaious outfits but all conservative business dress.
You can have coffee
and write this blog entry.
You can marvel at how many doctors travel in packs now. My Endo team is a pack of three. clearly I scare the Big Boffin because yesterday his team was one other today he walks in with three others!
The staff here are all in uniforms blue for cleaners, blue stipes for nursing, red strips are pharmaphcy I think. even the doctors are in a uniform of sorts long sleeve dress shirt pipstripes, tie, dress pants, the female doctors are a breath of fresh air. in vaious outfits but all conservative business dress.
You can have coffee
and write this blog entry.
more later
chris
Monday, August 18, 2014
A little education goes a long way
So had a big day of visits and it my not be over yet.
The Big Boffin and the Nephro team w in this am and is happy with how I'm going no news about when I get to leave.
Next throught the revolving door is the Nurse Educator. She was very nice and I got presents! I got a new you beaut test meter, a new bag of misc stuff and my own insulin! She talked about a ton of stuf and she is back tomorrow to see how much soasked in. I did test reading for her and I got to inject my lunch time insulin and its going swimmingly.
Bluey took a hike after my lunch as she has a meeting tonite and its looking like I'mhere for at least a day or two.
Next through the door was the Endochronologist team, Dr. Who and her resident and her student.They reviewed my chart and I'm still too high and not fully balanced yet and told me that I was probably here till Thursday. They all look at my feet and pronounced I need to see the Podiatrist.
I got a visit form the Pharmacist sho was trying to make sense of my meds new and old.
I'm wondering if there are hidden camera and this an episode of "Guniness book of world records" This the episode where the team surrounding our hapless patient don't know that we are going to see how many doctors we can get in on one patient/one visit.
Anyway I just finished with the Dietician. She took my history and gave some tips but is coming back tomorrow to spend more time and give me more info.
Wow Lots of docs and lots of info. I need to stay longer just to be able to get it all in.
more later
Chris
The Big Boffin and the Nephro team w in this am and is happy with how I'm going no news about when I get to leave.
Next throught the revolving door is the Nurse Educator. She was very nice and I got presents! I got a new you beaut test meter, a new bag of misc stuff and my own insulin! She talked about a ton of stuf and she is back tomorrow to see how much soasked in. I did test reading for her and I got to inject my lunch time insulin and its going swimmingly.
Bluey took a hike after my lunch as she has a meeting tonite and its looking like I'mhere for at least a day or two.
Next through the door was the Endochronologist team, Dr. Who and her resident and her student.They reviewed my chart and I'm still too high and not fully balanced yet and told me that I was probably here till Thursday. They all look at my feet and pronounced I need to see the Podiatrist.
I got a visit form the Pharmacist sho was trying to make sense of my meds new and old.
I'm wondering if there are hidden camera and this an episode of "Guniness book of world records" This the episode where the team surrounding our hapless patient don't know that we are going to see how many doctors we can get in on one patient/one visit.
Anyway I just finished with the Dietician. She took my history and gave some tips but is coming back tomorrow to spend more time and give me more info.
Wow Lots of docs and lots of info. I need to stay longer just to be able to get it all in.
more later
Chris
Sunday, August 17, 2014
Its a bad day for the dessert pocket.
Friends please bow your heads for a moment of silence. At 2:00pm on August 15th 2014 the dessert pocket was sewn shut! Its been nailed closed. Its been filled with rocks. There will be no desserts eaten for some time.
We have a new player in our little game of hormones! Please welcome Dr Who to the arena. No, nothing to do with science fiction she just has big glasses and an open expression. Dr Who is an endocrinologist and will be managing my diabetes. She was very straight forward and didn't say directly but indicated I had been fooling myself about how well I was handling my sugars. Yes there were unusual circumstances (medications etc) but I need to get a grip RIGHT now. So I'm going to be on insulin once a day long acting and insulin three times at meals short acting with at least four readings a day on my meter. For the foreseeable future. Maybe when I get finished the kidney treatment in 6 months we can look at a tablet solution.
Yep I am well and truly a diabetic and until I get my own insulin sorted I won't get out of here. Nurse educator is due tomorrow to give me my pen and .... education. Dietician is due tomorrow to slap me about portion size.
I still have one little issue and that's my pulse, its in the forties. And for those that are healthy it would be a great thing, a sign that you are fit. for me it means something else is not quite right. They have dropped my second blood pressure med and are watching the pulse and every time I get my obs taken the nurses are a bit freaked but do that " nothing to worry about here side ways dance" all way back to their pals at the nursing station to see what to do. Then they come back with a really relieved look on their face. Or I could be wrong. anyway that's more of what they want to make sure of before they let me go.
So I think I won't be going home tomorrow and I may be on track to go home on Tuesday
Bluey is going home to HB tomorrow because she has a meeting tomorrow night. I may get the train home or she may come back depending on when I actually get released. I'm due back at ICON on Friday anyway so who knows.
More later from the land that dessert forgot. Or is it desserted
Chris
We have a new player in our little game of hormones! Please welcome Dr Who to the arena. No, nothing to do with science fiction she just has big glasses and an open expression. Dr Who is an endocrinologist and will be managing my diabetes. She was very straight forward and didn't say directly but indicated I had been fooling myself about how well I was handling my sugars. Yes there were unusual circumstances (medications etc) but I need to get a grip RIGHT now. So I'm going to be on insulin once a day long acting and insulin three times at meals short acting with at least four readings a day on my meter. For the foreseeable future. Maybe when I get finished the kidney treatment in 6 months we can look at a tablet solution.
Yep I am well and truly a diabetic and until I get my own insulin sorted I won't get out of here. Nurse educator is due tomorrow to give me my pen and .... education. Dietician is due tomorrow to slap me about portion size.
I still have one little issue and that's my pulse, its in the forties. And for those that are healthy it would be a great thing, a sign that you are fit. for me it means something else is not quite right. They have dropped my second blood pressure med and are watching the pulse and every time I get my obs taken the nurses are a bit freaked but do that " nothing to worry about here side ways dance" all way back to their pals at the nursing station to see what to do. Then they come back with a really relieved look on their face. Or I could be wrong. anyway that's more of what they want to make sure of before they let me go.
So I think I won't be going home tomorrow and I may be on track to go home on Tuesday
Bluey is going home to HB tomorrow because she has a meeting tomorrow night. I may get the train home or she may come back depending on when I actually get released. I'm due back at ICON on Friday anyway so who knows.
More later from the land that dessert forgot. Or is it desserted
Chris
Saturday, August 16, 2014
that's better
So I rushed with Bluey down to the Hospital that lies on greenslopes. Unit 33 bed 36. we got here at 10:30 into room around 11:30 didn't see the doc until 1:00, got my canulla at 2:00, got insulin at 3:00, ECG at 4:00, obs every two hours, Blood sugar test every two hours, weight chair at 6:00. ........
Yep this is the place to get some rest!
I did get some sleep but it was in chunks betweeen other stuff.
How did this happen? Well, as you know I've been put off from trying to fix my bone marrow while we go on a quest to fix my kidneys. and we started with cyclosporin my immune suppression of choice and that wasn't working, so we moved on to big lashings of Prednisone alternating with Cyclophosfimide. and we got into the first shot of Pred and it set my sugars off and even when we tapered it off my sugars stayed high so in my blood test on Thursday the blood sugar was at 40.
Now you the average punter have a blood sugar level between 4 and 6. the Melissas and Mishs, Lisas and Lous, Larses and Carlas are close to the 4 level I think. So to think that others are 2 or 3 points above that and I'm 10 times that. You get the picture. Its really really bad. Damage starts to happen at that point. We think its not happened yet but I'm glad we are getting on top of it.
Also my Potassium is too high, my sodium is too low, my creatin is too high, my protein in the urine is still to high..... I'm out of balance. the Big Boffin was bit concerned and indicated that if I was in his office instead of at the other end of a Skype call he's be putting me into hospital to get things sorted. We didn't want to go into the local so we made dinner, ate it and hit the road. So here I am at the servo getting my tyres rotated and balanced.
I just got my second jab of insulin.
My body was trying to get used to high sugar levels, peeing a LOT, other really antisocial behaviours, hormone and steroid changes etc. So my climb back down the sugar tree is going to be uncomfortable I'm told. and I do feel a be woozy right now but its still better that eye damage or extremity damage, cardiac vascular damage. I'm going to be on insulin for a while at least six months for the kidney repair treatment and maybe longer. And since the treatment involves on and off Prednisone I'll be juggling the insulin levels to try to balance things out.
Meanwhile back at the bone morrow ........what's goin on? I don't have a clue.
More later from "drama's are us"
Chris
Yep this is the place to get some rest!
I did get some sleep but it was in chunks betweeen other stuff.
How did this happen? Well, as you know I've been put off from trying to fix my bone marrow while we go on a quest to fix my kidneys. and we started with cyclosporin my immune suppression of choice and that wasn't working, so we moved on to big lashings of Prednisone alternating with Cyclophosfimide. and we got into the first shot of Pred and it set my sugars off and even when we tapered it off my sugars stayed high so in my blood test on Thursday the blood sugar was at 40.
Now you the average punter have a blood sugar level between 4 and 6. the Melissas and Mishs, Lisas and Lous, Larses and Carlas are close to the 4 level I think. So to think that others are 2 or 3 points above that and I'm 10 times that. You get the picture. Its really really bad. Damage starts to happen at that point. We think its not happened yet but I'm glad we are getting on top of it.
Also my Potassium is too high, my sodium is too low, my creatin is too high, my protein in the urine is still to high..... I'm out of balance. the Big Boffin was bit concerned and indicated that if I was in his office instead of at the other end of a Skype call he's be putting me into hospital to get things sorted. We didn't want to go into the local so we made dinner, ate it and hit the road. So here I am at the servo getting my tyres rotated and balanced.
I just got my second jab of insulin.
My body was trying to get used to high sugar levels, peeing a LOT, other really antisocial behaviours, hormone and steroid changes etc. So my climb back down the sugar tree is going to be uncomfortable I'm told. and I do feel a be woozy right now but its still better that eye damage or extremity damage, cardiac vascular damage. I'm going to be on insulin for a while at least six months for the kidney repair treatment and maybe longer. And since the treatment involves on and off Prednisone I'll be juggling the insulin levels to try to balance things out.
Meanwhile back at the bone morrow ........what's goin on? I don't have a clue.
More later from "drama's are us"
Chris
Friday, August 15, 2014
rrush to the south
we are in the car heading to green slopes hospital in brisbane.
my results from yesterday are shocking and I'm not feeling significantly better today so the big boffin wants me on a drip so we can mellow out mylevels.
right now my Potassium is high my sodim is low my creatin is 180 and my sugar yesterday was 40! that's ten times normal!
my results from yesterday are shocking and I'm not feeling significantly better today so the big boffin wants me on a drip so we can mellow out mylevels.
right now my Potassium is high my sodim is low my creatin is 180 and my sugar yesterday was 40! that's ten times normal!
Wednesday, July 30, 2014
"your kidneys are crap" again
okay I have a lot to cover since i've been holding off blogging.
the treatment I was on is not workinf despite adjusting my meds a couple of times. Doc Shoozenbootzen has told doc Boffin he should treatment like someone off the street and go for it with the new treatment.
I take this to mean that the Myleo Fibrosis is not as big a prioity as getting my kidneys working properly again. We have worked so hard over the past two years trying to get my immune system ramped up through interferon and later my brothers lymphocytes and now they are talking about slaming my immunesystem down with a "Chelelli Protocol" or something like that. but the bottom line is slaming the immune system at a marrow level rather that the blood level they were trying already.
So its worrying that we are abandoning the attack on the fibrosis, its worrying that I have crap kidneys and its worrying that the new slam regiment starts with 50mg of prednisone. now you may remember the this hormone makes me hyper and ive been on 15 mgs for the past month and im still friends with everyone. I even did 3 days of 50 mgs as part of fixing my knee. the new treament is 50mg a day for 30 days then a chemo drug (cytotoxin) for a month then repeat twice more. So its a 6 month paln that involves drugs I don't like.
I'm not happy about this but as always Im happy about the great doctors I have and I'm happy to be trying fix myself but geeze louise ....
more later ...obviously.
Chris
the treatment I was on is not workinf despite adjusting my meds a couple of times. Doc Shoozenbootzen has told doc Boffin he should treatment like someone off the street and go for it with the new treatment.
I take this to mean that the Myleo Fibrosis is not as big a prioity as getting my kidneys working properly again. We have worked so hard over the past two years trying to get my immune system ramped up through interferon and later my brothers lymphocytes and now they are talking about slaming my immunesystem down with a "Chelelli Protocol" or something like that. but the bottom line is slaming the immune system at a marrow level rather that the blood level they were trying already.
So its worrying that we are abandoning the attack on the fibrosis, its worrying that I have crap kidneys and its worrying that the new slam regiment starts with 50mg of prednisone. now you may remember the this hormone makes me hyper and ive been on 15 mgs for the past month and im still friends with everyone. I even did 3 days of 50 mgs as part of fixing my knee. the new treament is 50mg a day for 30 days then a chemo drug (cytotoxin) for a month then repeat twice more. So its a 6 month paln that involves drugs I don't like.
I'm not happy about this but as always Im happy about the great doctors I have and I'm happy to be trying fix myself but geeze louise ....
more later ...obviously.
Chris
Tuesday, June 3, 2014
Treatment started
So I have seen the Big Boffin again Monday after the Clydesdale Spectacular….and it was!
He looked at some of my numbers and they aren't great yet, we need more time to see it start I guess.
More info: I have OMI Nephthropothy the las part means bad kidneys and the first part means "we don't know how you got it" I have started on Cyclosporin to suppress my immune system, along with 20 mg of prednizone once a day. Its not a good a kick as the 50mg I was taking for my knee but I still got a lot of stuff done today! I'm also having to up my blood pressure meds and my blood sugar needs watching but my new test strips are acting weird or I have really jumped and and need insulin but I'll have to sort that out later this week Im trying to get a hold of some control test solution for my meter but they don't answer the phone.
I feel fine though so that's a blessing. Really watching what I eat these past few days. Theres nothing like seeing your sugar in the teens to keep food out of your mouth.
that Nice lady I volunteer with at Leukaemia Foundation to support patients called again to see if I need anything. It was wonderful to have them all call me from the meeting last Wednesday to wish me well. I'm still warmed by it. Thanks all.
Just a little update
More later
Chris
He looked at some of my numbers and they aren't great yet, we need more time to see it start I guess.
More info: I have OMI Nephthropothy the las part means bad kidneys and the first part means "we don't know how you got it" I have started on Cyclosporin to suppress my immune system, along with 20 mg of prednizone once a day. Its not a good a kick as the 50mg I was taking for my knee but I still got a lot of stuff done today! I'm also having to up my blood pressure meds and my blood sugar needs watching but my new test strips are acting weird or I have really jumped and and need insulin but I'll have to sort that out later this week Im trying to get a hold of some control test solution for my meter but they don't answer the phone.
I feel fine though so that's a blessing. Really watching what I eat these past few days. Theres nothing like seeing your sugar in the teens to keep food out of your mouth.
that Nice lady I volunteer with at Leukaemia Foundation to support patients called again to see if I need anything. It was wonderful to have them all call me from the meeting last Wednesday to wish me well. I'm still warmed by it. Thanks all.
Just a little update
More later
Chris
Thursday, May 29, 2014
Just Waiting.......Wait.......Not Anymore!
So I'm waiting for the doctor (Doc Boffin) the king of the renal team to drop by.
You see I've been visited by Doc Shoozenbootzen who came with Young Doctor Young Intern and basically picked up the latest info and said that the renal team are in charge so I get out when they want, and then he left. Then I got visited by the Heamo registrar and he said the renal team are calling the shots, and left.
He dropped back by to ask if the renal king had been a further three times today. Its now 7:00pm and still no Big Boffin.
That's not true he stuck his head in this afternoon to say he wasn't here but would be here later and he dropped of a last year Student doing an assesment. She was very nice but there was confusion for a minute because the Haemo Registrar was the person who asked me if they could use me as the "test dummy". But I had a nice hour long history and exam.
Doc Big Boffin just came by: Listen up dear reader here's the scoop.
I was worried that it was BAD and that I was going to get info about my Dear Dead Kidneys.... they actually are NOT dead but they've been kicked a bit.
I have Nephrotic Syndrome. Side bar: I don't know how to spell it but my doc is a Nephrologist
so the nef part means kidneys and the rest means "it can't be good" ...just go google it! Not known at this time what the cause is exactly but the treatment offered will confirm the suspected cause. It is that my new immune system is attacking my kidneys. Rememer back when I was taking Cyclosporin to suppress my immune system? ...and then I got off of it a couple of years back? .....and we were watching for GVHD and watching my skin and my legs and my liver. Well it might have been deaking us out by going quietly to my kidneys.
Anyway the treatment is to re start Cyclosporin and start me on Prednisone at a medium dose for some time. I'll also have to have some cholestrol reducing agent and sugar reducing agent as both will be elevated by the prednisone and as well, my blood pressure will need to be controlled but I'm already on that now it will just be adjusted.
This may be a long term solution and it won't repair any slight damage already done but it should keep me from getting any worse. In fact it should reduce the leaking protein, help with the legs taking on water, and reduce the gout,AND reduce the exzma so this is looking very good.
Oh and all day I've heard "you'll leave only when the Big Boffin wants you gone" and the nurse just came in with my new drugs, talk about fast workers, and says "You are going to leave tomorrow, doc boffin has signed off!"
So Clydesdale Spectacular here we come. This was made possible by Big Boffin agreeing to let me go, rather then to keep me for the weekend to monitor my drug level, as I'm going to be relatively close and I'm going to stay with a Senior Practise Nurse. I have to check my blood pressure quite often and my blood sugars and then on Monday we have to stop back in "his rooms" (I love that they still call a Dr's office Rooms). I will do a blood test Monday AM and then go see him to check my Cyclosporin levels and sugar levels etc. then we can go home.
So.....thats Not So Bad! Could have been lots worse. I don't know what you all were worried about anyway.... piece of cake. (oh crap I'm really going to have to cut back on sweets because of the raised levels AND because the Prednisone makes me ravenous.)
more later (see I told you)
Chris
You see I've been visited by Doc Shoozenbootzen who came with Young Doctor Young Intern and basically picked up the latest info and said that the renal team are in charge so I get out when they want, and then he left. Then I got visited by the Heamo registrar and he said the renal team are calling the shots, and left.
He dropped back by to ask if the renal king had been a further three times today. Its now 7:00pm and still no Big Boffin.
That's not true he stuck his head in this afternoon to say he wasn't here but would be here later and he dropped of a last year Student doing an assesment. She was very nice but there was confusion for a minute because the Haemo Registrar was the person who asked me if they could use me as the "test dummy". But I had a nice hour long history and exam.
Doc Big Boffin just came by: Listen up dear reader here's the scoop.
I was worried that it was BAD and that I was going to get info about my Dear Dead Kidneys.... they actually are NOT dead but they've been kicked a bit.
I have Nephrotic Syndrome. Side bar: I don't know how to spell it but my doc is a Nephrologist
so the nef part means kidneys and the rest means "it can't be good" ...just go google it! Not known at this time what the cause is exactly but the treatment offered will confirm the suspected cause. It is that my new immune system is attacking my kidneys. Rememer back when I was taking Cyclosporin to suppress my immune system? ...and then I got off of it a couple of years back? .....and we were watching for GVHD and watching my skin and my legs and my liver. Well it might have been deaking us out by going quietly to my kidneys.
Anyway the treatment is to re start Cyclosporin and start me on Prednisone at a medium dose for some time. I'll also have to have some cholestrol reducing agent and sugar reducing agent as both will be elevated by the prednisone and as well, my blood pressure will need to be controlled but I'm already on that now it will just be adjusted.
This may be a long term solution and it won't repair any slight damage already done but it should keep me from getting any worse. In fact it should reduce the leaking protein, help with the legs taking on water, and reduce the gout,AND reduce the exzma so this is looking very good.
Oh and all day I've heard "you'll leave only when the Big Boffin wants you gone" and the nurse just came in with my new drugs, talk about fast workers, and says "You are going to leave tomorrow, doc boffin has signed off!"
So Clydesdale Spectacular here we come. This was made possible by Big Boffin agreeing to let me go, rather then to keep me for the weekend to monitor my drug level, as I'm going to be relatively close and I'm going to stay with a Senior Practise Nurse. I have to check my blood pressure quite often and my blood sugars and then on Monday we have to stop back in "his rooms" (I love that they still call a Dr's office Rooms). I will do a blood test Monday AM and then go see him to check my Cyclosporin levels and sugar levels etc. then we can go home.
So.....thats Not So Bad! Could have been lots worse. I don't know what you all were worried about anyway.... piece of cake. (oh crap I'm really going to have to cut back on sweets because of the raised levels AND because the Prednisone makes me ravenous.)
more later (see I told you)
Chris
Wednesday, May 28, 2014
Expectations
I expected that the kidney biospy would hurt, after all they stuck a 2 mm hollow tube into my back and right up to my kidney. Then they stuck a device down the centre of the needle and sniped a bit of kidney for the scientist. But other then a bit as they injected anaesthetic into my skin and at several points as they pushed the needle into me there was no pain. the worst part was lying on my tummy keeping absolutley still with my head cranked over to the side. I also didn't expect to be whipped into and out of the CT machine so many times they did a couple to position the lead dots on my back then after the doc started shoving the neddle in they did 4 more shots at each level of push to check its location. Then a few more times after each of the biospy grabs.
After the procedure, back in the waiting room ....picture rows of patients in beds lined up to go in or out of imaging rooms...I was asked to roll over so the nurse could look at my wound to check for oozing. I didn't expect her to compliment my butt but saying "looks beautiful"... now that I think about it she might have been talking about the lack of ooze.
Upon my return I didn't expect to recieve a phone call from the members of our little Lukaemia mutual support group that I help to organize. They were meeting down by the beach in Hervey Bay as usual even though I couldn't make it this time. They called me and all got on the phone to wish me well and cheer me on. Very humbling that these folks, some with treatment issues, some having lost partners or daughters, would take this much time to call me.
So many expectations flipped so many surprises and I still have at least a day or two more here.
Miss bluey
I miss Bluey. She had to return to work for Wednesday & Thursday but we are talking.
More later when I see the Docs.
Chris
After the procedure, back in the waiting room ....picture rows of patients in beds lined up to go in or out of imaging rooms...I was asked to roll over so the nurse could look at my wound to check for oozing. I didn't expect her to compliment my butt but saying "looks beautiful"... now that I think about it she might have been talking about the lack of ooze.
Upon my return I didn't expect to recieve a phone call from the members of our little Lukaemia mutual support group that I help to organize. They were meeting down by the beach in Hervey Bay as usual even though I couldn't make it this time. They called me and all got on the phone to wish me well and cheer me on. Very humbling that these folks, some with treatment issues, some having lost partners or daughters, would take this much time to call me.
So many expectations flipped so many surprises and I still have at least a day or two more here.
Miss bluey
I miss Bluey. She had to return to work for Wednesday & Thursday but we are talking.
More later when I see the Docs.
Chris
the sublime to the rediculous.
okay so Bluey and I were cooling are heels waiting and waiting for some action yesterday and we called the Doc Boffins office and they didnt know when he was coming and we texted Doc shoozenbootzen's practise manager and no one knew what was happening next.
Which makes sense if what was to happen next was a circus. You never know what's happening next at a circus.
First we young doctor renal Intern whos did a full exam and history half hour of chat and proding, Then in walks young doctor Haemo intern who proceeds to do a full history and exam. Warmer hands this time which was slight compensation for a more complete proding. Then Young Doc Renal is back ording blood tests and trying to find my previous results of 24 urine and Ultrasound of kidneys. Then we get a flash appearance by young doctor renal registratrar. Didn't get her name but in a bit in walks the renal team, yong doc intern, young doc registrar and the man himself Doc Boffin. Now we are getting somewhere.
We are going to have another 24 hour urine, Check. and booked for kidney biospy on Friday. NOT BLoody check. We didn't have to say much as Doc Boffin worked out that that was still two days away and that results would come out till Monday and the whole time I'm in hospital???? He though and murmurred and prenounce they would try for today and I'm booked for 9:45 today! results on Thursday maybe out on Friday! That's better.
I'm told that my deposits for my test have filled the first one gallon collection bottle so I know I'm processing enough water to be hydrated! I'm on a saline drip now as I'm Nil ByMouth till after the procedure in a half hour.
In fact I better get ready so I'll let you know what happens ...
more later
Chris
Which makes sense if what was to happen next was a circus. You never know what's happening next at a circus.
First we young doctor renal Intern whos did a full exam and history half hour of chat and proding, Then in walks young doctor Haemo intern who proceeds to do a full history and exam. Warmer hands this time which was slight compensation for a more complete proding. Then Young Doc Renal is back ording blood tests and trying to find my previous results of 24 urine and Ultrasound of kidneys. Then we get a flash appearance by young doctor renal registratrar. Didn't get her name but in a bit in walks the renal team, yong doc intern, young doc registrar and the man himself Doc Boffin. Now we are getting somewhere.
We are going to have another 24 hour urine, Check. and booked for kidney biospy on Friday. NOT BLoody check. We didn't have to say much as Doc Boffin worked out that that was still two days away and that results would come out till Monday and the whole time I'm in hospital???? He though and murmurred and prenounce they would try for today and I'm booked for 9:45 today! results on Thursday maybe out on Friday! That's better.
I'm told that my deposits for my test have filled the first one gallon collection bottle so I know I'm processing enough water to be hydrated! I'm on a saline drip now as I'm Nil ByMouth till after the procedure in a half hour.
In fact I better get ready so I'll let you know what happens ...
more later
Chris
Tuesday, May 27, 2014
Well here I am
I'm at the Greenslopes private Hospital in lovely Greenslopes, Brisbane Queensland. I'm here be cause Doc Shoozenbootzen booked me in to see a new boffin doc for my kidneys. The nurse recognized Doc Boffins name and apparently I'm on the right kind of ward, but I don't still don't know what kind that is. She, the nurse, doesn't know why I'm here exactly, I don't know why exactly. I don't even know when I'm going to find out what up!
the real problem is the menu left on my table is yesterdays so at 11:27 with no staff visiting and now info and not even a menu form that is up to date.........I'm not going to get lunch!
Many of you know that to stand between me and my food ....and more importantly food timeing is to get trampled!.
Hurray, the dietician came in and although I don't get to choose, I'm due for lunch! and I'm choosing the rest of my meals now. See, just give me a schedule of food and I'm set! Now my meals are set they can do anything to me.
I think I get to see my new Doc Boffin this afternoon but not sure why I believe that but I need to hang my beliefs on something so that will do. My Nurse has taken my blood sugar and that's good I've signed some more forms. I guess that now I've signed in there may be some actual action in the "telling Chris what the tests are" front. Maybe the doc will show up in the middle of lunch!
more later
Chris
the real problem is the menu left on my table is yesterdays so at 11:27 with no staff visiting and now info and not even a menu form that is up to date.........I'm not going to get lunch!
Many of you know that to stand between me and my food ....and more importantly food timeing is to get trampled!.
Hurray, the dietician came in and although I don't get to choose, I'm due for lunch! and I'm choosing the rest of my meals now. See, just give me a schedule of food and I'm set! Now my meals are set they can do anything to me.
I think I get to see my new Doc Boffin this afternoon but not sure why I believe that but I need to hang my beliefs on something so that will do. My Nurse has taken my blood sugar and that's good I've signed some more forms. I guess that now I've signed in there may be some actual action in the "telling Chris what the tests are" front. Maybe the doc will show up in the middle of lunch!
more later
Chris
Sunday, May 18, 2014
Kidneys on toast
Some people like offal. I reckon its awful. some people like kidneys on toast.
My kidneys are toast. Maybe they are just lightly browned or maybe they aren't coloured up at all just slightly dried out. They are still working and they are taking out out impurities but they are letting proteins go out as well and that's not good. So it has be decided that I much got to Doc Shoozenbootzen's "Kidney Guy" so far this guy has no name real or alias so I'm thinking Kidney Guy work for the time being.
They wanted me to go into hospital on Bluey's birthday to have some tests including a kidney biopsy so I'm guessing the involves being under general and having those hand grippy stick things stuck into my gas inflated abdomen, getting a snip off the kidney and they waiting for results. Doc S-B says three days. I've put a hold on that a bit and hope to get a consult with KidneyGuy before we go on this.
Doc S-B Thinks my Diabetes my be the cause of all my leg issues. I've been getting good reading in the morning lately so not sure thats it. I did get a high 20 with my blood test at the last intragamm appointment but that was just after eating morning tea sop not sure that counts but the Doc is freaked.
So I'm on new blood pressure meds to try to reduce the leg swelling side effect. my be too early but I notice less night urination and the legs look better. My knee started hurting a bit last week but has improved and is the best its been in a long while so that med change may be working. I'm also using a TENS machine at home and ice packs to some good effect.
I'm pretty sure that we will find a mechanical solution when I finally get in to see the local arthropod. I shall not call him Leprechaun despite being irish named and short. I prefer Window. This is because his last name is a shortened version the cross bars that hold the glass in a multipaned window. Doc Window has so many people lined up to see him he can't get to me till August. I'm thinking this is because he can't operate on tonnes of folk in a week so why see them? I'm on the waiting list to get in sooner. Next time I'm in big pain with the knee I'm drop in to see the appointments person and moan and groan in the waiting room and I bet I get a sooner appointment. Anyway Its all good today so no worries!
Sun is out, not to cold, but cool. Floydd has walked and is now surveying the valley from his perch on the deck. Bluey is still sleeping on this, the first day of Birthday Week. I can't feel any pain in my knee (and it's actually bent a bit under the desk!). I'm about to go put the coffee on and start making waffles.
more later
Chris
My kidneys are toast. Maybe they are just lightly browned or maybe they aren't coloured up at all just slightly dried out. They are still working and they are taking out out impurities but they are letting proteins go out as well and that's not good. So it has be decided that I much got to Doc Shoozenbootzen's "Kidney Guy" so far this guy has no name real or alias so I'm thinking Kidney Guy work for the time being.
They wanted me to go into hospital on Bluey's birthday to have some tests including a kidney biopsy so I'm guessing the involves being under general and having those hand grippy stick things stuck into my gas inflated abdomen, getting a snip off the kidney and they waiting for results. Doc S-B says three days. I've put a hold on that a bit and hope to get a consult with KidneyGuy before we go on this.
Doc S-B Thinks my Diabetes my be the cause of all my leg issues. I've been getting good reading in the morning lately so not sure thats it. I did get a high 20 with my blood test at the last intragamm appointment but that was just after eating morning tea sop not sure that counts but the Doc is freaked.
So I'm on new blood pressure meds to try to reduce the leg swelling side effect. my be too early but I notice less night urination and the legs look better. My knee started hurting a bit last week but has improved and is the best its been in a long while so that med change may be working. I'm also using a TENS machine at home and ice packs to some good effect.
I'm pretty sure that we will find a mechanical solution when I finally get in to see the local arthropod. I shall not call him Leprechaun despite being irish named and short. I prefer Window. This is because his last name is a shortened version the cross bars that hold the glass in a multipaned window. Doc Window has so many people lined up to see him he can't get to me till August. I'm thinking this is because he can't operate on tonnes of folk in a week so why see them? I'm on the waiting list to get in sooner. Next time I'm in big pain with the knee I'm drop in to see the appointments person and moan and groan in the waiting room and I bet I get a sooner appointment. Anyway Its all good today so no worries!
Sun is out, not to cold, but cool. Floydd has walked and is now surveying the valley from his perch on the deck. Bluey is still sleeping on this, the first day of Birthday Week. I can't feel any pain in my knee (and it's actually bent a bit under the desk!). I'm about to go put the coffee on and start making waffles.
more later
Chris
Monday, May 5, 2014
Something Pithy This Way Comes
or not…
It remains to be seems whether or not this post is pithy but I'm working on the "it you say it it will be so" school of live happenings, so maybe it will be good.
or not..
Anyway to the topic of today's dissertation. "If you have a bad knee and and you can't get in to see the Orthopod for 3 months , should you cut off your leg".
I'm still having issues with right knee but I have my own TENS machine and I'm looking at alternative therapies with magnetics, So far the the best is Prednisone but that has a WHOLE set of problems that go with it. I'm cycling down now to a very low dose to see if I can get it to still help but reduce my other side effects.
My blood pressure medication is also being changed so that it might reduce the swelling in my legs, and we just found out that Prednisone may also cause swelling. But I'm taking it to reduce the pain and inflammation in the my knee, when its gout in there that's causing the problem!
My kidneys are leaking protein…..
BUT I feel real good! No really I now have appointments with a Dietician, Phyistherapists, Ortho Surgeon, GP, and Oncologist to try and figure this out so surely they will do so. In the meantime I bumble along and I'm getting so many things done around the house because I'm so hyper.
Not much Pith but some sharing.
Maybe when there's
More later
It remains to be seems whether or not this post is pithy but I'm working on the "it you say it it will be so" school of live happenings, so maybe it will be good.
or not..
Anyway to the topic of today's dissertation. "If you have a bad knee and and you can't get in to see the Orthopod for 3 months , should you cut off your leg".
I'm still having issues with right knee but I have my own TENS machine and I'm looking at alternative therapies with magnetics, So far the the best is Prednisone but that has a WHOLE set of problems that go with it. I'm cycling down now to a very low dose to see if I can get it to still help but reduce my other side effects.
My blood pressure medication is also being changed so that it might reduce the swelling in my legs, and we just found out that Prednisone may also cause swelling. But I'm taking it to reduce the pain and inflammation in the my knee, when its gout in there that's causing the problem!
My kidneys are leaking protein…..
BUT I feel real good! No really I now have appointments with a Dietician, Phyistherapists, Ortho Surgeon, GP, and Oncologist to try and figure this out so surely they will do so. In the meantime I bumble along and I'm getting so many things done around the house because I'm so hyper.
Not much Pith but some sharing.
Maybe when there's
More later
Sunday, April 27, 2014
Daddy's Little Helper
Ride on mowing
Push mowing
Clear out dead banana trees
End of day one on knee that works and doesn't hurt.
Weed new little gardens
Water new little gardens
Distract flooded so he does take off the the neighbours
Water frangipani
EITHER take out the fast food containers to the shop for hardware sorting
OR get that garbage out of the house
GUESS which voice was mine and which was Joyce's
Distract Floydd
Paint first coat on "Healing Garden" sign post.
Make lunch
Accept " this is lovely honey" compliment
2 coat on post
Dig out foot of foundation for new hot water tank pad.
Form up foot for concrete
3 coat on post
Distract Floydd
Extend new drainpipe from new retaining wall
Make nifty adaptor for same
Clear weds from garden shed
Chop weeds and compost them
Distract Floydd.
Come in for arvo smoko
End of day two.....
Hey if I have to take these steroids I might as well get some use from the hyper feeling!
Push mowing
Clear out dead banana trees
End of day one on knee that works and doesn't hurt.
Weed new little gardens
Water new little gardens
Distract flooded so he does take off the the neighbours
Water frangipani
EITHER take out the fast food containers to the shop for hardware sorting
OR get that garbage out of the house
GUESS which voice was mine and which was Joyce's
Distract Floydd
Paint first coat on "Healing Garden" sign post.
Make lunch
Accept " this is lovely honey" compliment
2 coat on post
Dig out foot of foundation for new hot water tank pad.
Form up foot for concrete
3 coat on post
Distract Floydd
Extend new drainpipe from new retaining wall
Make nifty adaptor for same
Clear weds from garden shed
Chop weeds and compost them
Distract Floydd.
Come in for arvo smoko
End of day two.....
Hey if I have to take these steroids I might as well get some use from the hyper feeling!
Saturday, April 19, 2014
Life's little trails or trials?
I'm trying to be lay back but I'm getting more and more pissed off about my leg.
I've been having more problems with gout and my kidneys. Compounded by high blood pressure. I went on meds for the BP about two months ago and I've had two really bad gout attacks in my knee in the past 6 weeks. To the point where I'm on Prednizone you know that steroid with the side effect of divorce! I get real rangy on it.
The good news is that it's a 6 day course so the end is insight. But before the Prednizone I was on Endone for the pain and this second time it was not even cutting it fully. I had a couple of "Joyce, just get an axe and cut it off days.".
This is all complicate by my kidneys "leaking protein into my urine" and having to have ultra sounds on my kidneys and the veins. And last time I saw Doc Shoozenbootzen. He whisked me off the the ima going place in the. Basement to get a Doppler ultrasound of my legs to rule out DVT! I looked at the tech and he looked at me and I said "we have been hear before" he said "yeah it was the other leg leg last time" that was last year when I started having gout issues. Anyway no DVT. Just giant leg.
I'm also getting my local GP to get an MRI of my knee and she agrees that maybe I do have some miniscus damage and that provides a site for the crystals (uric acid..gout) to attach.
And I have an appointment with a dietician to sort out gout menues because the internet would have me eat nothing at all.
I suspect this all has inter related Interactions and I'm sure we will find out wha5s what soon but in the mean time it's a pain in the knee!
Even when I'm better I'm trying to rest the knee and get it up to reduce swelling so the yard needs cutting and the retaining wall under the house is not advancing. Frustrating!
Well this was quite a pity party, whine Fest wasn't it!
This has been keeping me from re launching Big Knock.
But I have been mentoring a lad in year 3 who is a bit of a handful and I've been reading with two year 4 groups as part of use Mentoring Program at the neighbourhood centre. And I'm the logistics leader to a gro,up of self help Leukamia patients and their spouses. We aren't official with the foundation yet so I call it the Not a Support Group.
More later
Chris
I've been having more problems with gout and my kidneys. Compounded by high blood pressure. I went on meds for the BP about two months ago and I've had two really bad gout attacks in my knee in the past 6 weeks. To the point where I'm on Prednizone you know that steroid with the side effect of divorce! I get real rangy on it.
The good news is that it's a 6 day course so the end is insight. But before the Prednizone I was on Endone for the pain and this second time it was not even cutting it fully. I had a couple of "Joyce, just get an axe and cut it off days.".
This is all complicate by my kidneys "leaking protein into my urine" and having to have ultra sounds on my kidneys and the veins. And last time I saw Doc Shoozenbootzen. He whisked me off the the ima going place in the. Basement to get a Doppler ultrasound of my legs to rule out DVT! I looked at the tech and he looked at me and I said "we have been hear before" he said "yeah it was the other leg leg last time" that was last year when I started having gout issues. Anyway no DVT. Just giant leg.
I'm also getting my local GP to get an MRI of my knee and she agrees that maybe I do have some miniscus damage and that provides a site for the crystals (uric acid..gout) to attach.
And I have an appointment with a dietician to sort out gout menues because the internet would have me eat nothing at all.
I suspect this all has inter related Interactions and I'm sure we will find out wha5s what soon but in the mean time it's a pain in the knee!
Even when I'm better I'm trying to rest the knee and get it up to reduce swelling so the yard needs cutting and the retaining wall under the house is not advancing. Frustrating!
Well this was quite a pity party, whine Fest wasn't it!
This has been keeping me from re launching Big Knock.
More later
Chris
Sunday, January 19, 2014
Catch up
I have been reminded by my pal Gayla that I need to be more up to date with my posts.
So I have have been back to Brisbane to see Doc Shoozenbootzen and to my local GP and we have been on a kick to get my kidney, gout, swelling, eczema, itching and liver balanced and working properly.
So my swollen left foot (for the past two months) has started to go down. Usually its downish in the morning and blows up during the day. But now its only blownish uppish a bit later in the day. And I'm started on a drug to help my gout but it puts a bit more pressure on my kidneys so we have to start easy but I have not had any of the possible side effects.
I'm going to try to stop going on about the details of my side effects, gout, eczema, swelling etc. because the main issue is that my bone marrow has shit in it and that is slowly going away, we think. I'm worried that these little troubles are keeping my from the the great exultation I should be feeling at being alive and getting better in the bone marrow department.
I'm also going to, for a moment, reflect on the 37 pages views I got from the Ukraine. hmmmm.
More later
Chris
So I have have been back to Brisbane to see Doc Shoozenbootzen and to my local GP and we have been on a kick to get my kidney, gout, swelling, eczema, itching and liver balanced and working properly.
So my swollen left foot (for the past two months) has started to go down. Usually its downish in the morning and blows up during the day. But now its only blownish uppish a bit later in the day. And I'm started on a drug to help my gout but it puts a bit more pressure on my kidneys so we have to start easy but I have not had any of the possible side effects.
I'm going to try to stop going on about the details of my side effects, gout, eczema, swelling etc. because the main issue is that my bone marrow has shit in it and that is slowly going away, we think. I'm worried that these little troubles are keeping my from the the great exultation I should be feeling at being alive and getting better in the bone marrow department.
I'm also going to, for a moment, reflect on the 37 pages views I got from the Ukraine. hmmmm.
More later
Chris
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