So I have seen the Big Boffin again Monday after the Clydesdale Spectacular….and it was!
He looked at some of my numbers and they aren't great yet, we need more time to see it start I guess.
More info: I have OMI Nephthropothy the las part means bad kidneys and the first part means "we don't know how you got it" I have started on Cyclosporin to suppress my immune system, along with 20 mg of prednizone once a day. Its not a good a kick as the 50mg I was taking for my knee but I still got a lot of stuff done today! I'm also having to up my blood pressure meds and my blood sugar needs watching but my new test strips are acting weird or I have really jumped and and need insulin but I'll have to sort that out later this week Im trying to get a hold of some control test solution for my meter but they don't answer the phone.
I feel fine though so that's a blessing. Really watching what I eat these past few days. Theres nothing like seeing your sugar in the teens to keep food out of your mouth.
that Nice lady I volunteer with at Leukaemia Foundation to support patients called again to see if I need anything. It was wonderful to have them all call me from the meeting last Wednesday to wish me well. I'm still warmed by it. Thanks all.
Just a little update
More later
Chris
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