Just Waiting.......Wait.......Not Anymore!

So I'm waiting for the doctor (Doc Boffin) the king of the renal team to drop by.

You see I've been visited by Doc Shoozenbootzen who came with Young Doctor Young Intern and basically picked up the latest info and said that the renal team are in charge so I get out when they want, and then he left. Then I got visited by the Heamo registrar and he said the renal team are calling the shots, and left.

He dropped back by to ask if the renal king had been a further three times today. Its now 7:00pm and still no Big Boffin.

That's not true he stuck his head in this afternoon to say he wasn't here but would be here later and he dropped of a last year Student doing an assesment. She was very nice but there was confusion for a minute because the Haemo Registrar was the person who asked me if they could use me as the "test dummy". But I had a nice hour long history and exam.

Doc Big Boffin just came by: Listen up dear reader here's the scoop.

I was worried that it was BAD and that I was going to get info about my Dear Dead Kidneys.... they actually are NOT dead but they've been kicked a bit.

I have Nephrotic Syndrome.  Side bar: I don't know how to spell it but my doc is a Nephrologist
 so the nef part means kidneys and the rest means "it can't be good" ...just go google it!  Not known at this time what the cause is exactly but the treatment offered will confirm the suspected cause. It is that my new immune system is attacking my kidneys. Rememer back when I was taking Cyclosporin to suppress my immune system? ...and then I got off of it a couple of years back? .....and we were watching for GVHD and watching my skin and my legs and my liver. Well it might have been deaking us out by going quietly to my kidneys.

Anyway the treatment is to re start Cyclosporin and start me on Prednisone at a medium dose for some time. I'll also have to have some cholestrol reducing agent and sugar reducing agent as both will be elevated by the prednisone and as well, my blood pressure will need to be controlled but I'm already on that now it will just be adjusted.

This may be a long term solution and it won't repair any slight damage already done but it should keep me from getting  any worse. In fact it should reduce the leaking protein, help with the legs taking on water, and reduce the gout,AND reduce the exzma so this is looking very good.

Oh and all day I've heard "you'll leave only when the Big Boffin wants you gone" and the nurse just came in with my new drugs, talk about fast workers, and says "You are going to leave tomorrow, doc boffin has signed off!"

So Clydesdale Spectacular here we come. This was made possible by Big Boffin agreeing to let me go, rather then to keep me for the weekend to monitor my drug level, as I'm going to be relatively close and I'm going to stay with a Senior Practise Nurse. I have to check my blood pressure quite often and my blood sugars and then on Monday we have to stop back in "his rooms" (I love that they still call a Dr's office Rooms). I will do a blood test Monday AM and then go see him to check my Cyclosporin levels and sugar levels etc. then we can go home.

So.....thats  Not So Bad! Could have been lots worse. I don't know what you all were worried about anyway.... piece of cake. (oh crap I'm really going to have to cut back on sweets because of the raised levels AND because the Prednisone makes me ravenous.)

more later (see I told you)
Chris