I'm more than 5 yr out from bone marrow transplant. See other blog for the rest

Wednesday, September 17, 2014

Back on the Juice

I'm back in Hospital in Brisbane getting intravenous Prednisone at 20 times the amount I have done before and you all remember what it does to me. Hang on babies we are in for a ROUGH ride.

I got the first of three giant doses this morning at 8:00am and its 4:00pm and I haven't felt too bad at all but there may be a cumulative effect so we will see tomorrow but there may also be (I hope) a threshold for the crazy factor.

I'm already hungry as that is a side effect and my blood sugar has risen as expected but the Endo team have  me jacking more insulin then the usual so we may have a handle of that but they see me four times a day to check my blood test and make a decision about the next dose. I'm really lucky I have some great docs and while at hospital I have Registrars, Interns, Residents and Students as well. This time I'm getting them in small doses they haven't been traveling in packs but so far I've seen one renal and three endo docs.... today! I'm getting my moneys worth.!

I pay via my health fund that I got when we first moved here so I've been paying in for 17 years and now I'm getting the support. Anyway we get full cover for a private room and three months ago I got a bed in a quad room :(  and last time I got a single with a shared toilet :| and this time I'm in one of the carpeted, including toilet, single rooms  :). Next time I may actually get a room with a view ;) but I'm happy as a clam now cause I have great care.

Speaking of great care I just got a visit from The big Boffin AND his Registrar AND His resident!! They travel in packs again! Good review of all my levels and they are good or heading in a good direction. Except the blood sugars. The Endo team have that in hand I believe. We talked about the end of this little adventure and its up to the Endos to decide but they think Monday. The longer stay is because I'm going to be doing a month of my smaller dose of Prednisone and we have to get the dose for that right first. I'm to be released if we get the balance started on Saturday ( will still be messed up by the Friday IV Pred),  then the Sunday balance near perfect then home ward bound. Bluey was very disappointed as we had thoughI would get out on Saturday. but she has rebooked to come down on Monday.. Cross your fingers.

I'm a bit wired so I've been walking the ward in my fish pants and my best Mambo shirt, the one with the skeleton on it looks like i'm wide open,on show. Lots of comments and I'm having some chitchats as I walk so that's good.

My Nephew Little Bro has been in touch and says he had a moment of silence for my dessert pocket. People please don't despair the dessert pocket was there when I needed it . I told him...
In the past there was a time for titans....  a time for our heros to be larger than life but there comes a time when we have to put away the giant organs and face real life. .... the Dessert Pocket Had To Go.
 I'm working with my diet 2.0 and its going to be a great life and I will eat dessert again but just not as we have known it.

Have to go do my pre dinner blood test and get the dose sorted as I need to be ready for the dinner trolly cause....

Nothing  stands between me and my dinner when I'm in the 'Sone'

More later
Chris
p.s. Next post will be on the bigger picture as I had a long talk with the Boff about what may happen.