I'm more than 5 yr out from bone marrow transplant. See other blog for the rest

Thursday, June 16, 2016

Life's good!

Okay I've been remiss but I have an excuse.

Lots of things going on but first to the "weather report".

Things are a little changeable at the moment. Rain on the horizon maybe but it might just blow over.

Less cryptic version. I needed two bags of blood last trip to Brissy. We booked for overnight the time before and I didn't need it. So when we had to check into a hotel to get blood the next day we had no luggage no toothbrush etc. tomorrow I go down again and we are taking a packed bag but hope I don't need it. I feel good in myself and don't think I need it. We'll see

For. Those of you playing along at home you'll remember that my new drug Jacavi (go on google it you know you want to...voyeurs!), is doing its job and I haven't had to worry about itching or night sweats since a few days after starting it. The major Side effect of reducing red cells has caught up with me 4 weeks ago but Doc Shoozenbootzen says that the body sorts that out and I should start to come up over time.

For the techno math folks I was down to 78 before getting two bags of blood and each bag is the equivalent of 10 in red cells so I should have instantly come up to 98 or there abouts and two weeks ago (two weeks after the new blood) I was at 101 so no drop in the two weeks. Which is excellent! I can't believe I have adjusted to the Jacavi that fast so it may just be an aboration.

Come to think of it having a blood cancer is an aboration - end of whine.

So the fact that I feel like I have lots of red is a good sign but I may be delusional.

Many of you will agree!

I'm booked to be a trainee crew member on the South Passage. It's a ship run by a sail training Org to give young people team building experiences. I'm going to volunteer with them and the gave me the opportunity right off the bat to fly up to Cairns and do a one weeks voyage around the islands off Cairns. I have a watch leaders manual that 300 pages of  sailing, safety, seamanship etc. I will be a long time before I'm a watch leader but It will be fun in the meantime. Check out my Facebook page for more info and photos from the first day sail I did with them.

More later
Chris


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