A Big Day.

 Well it was a big day in the chair yesterday. A Big Day.

Got in early at 9:00am so we we up at 4 on the road at 5:00am to get to Brissy in time. It was really weird as there was pretty light traffic despite being the later end of rush hour as we got to Briasy. We got a newbie and she had a bit of a fumble on the access so we had another great nurse make the jab. Took blood and started the Intragamm. turns out that the super Nurse Practise Mgr from yesterday figured out how to get the operetta testing company to fix up their error and my crossmatched blood was waiting for me. Win! That will speed things up......or not. for some reason the access was slow and I was in the chair from 9am till 430 pm and then time to see the doc so didn't get out till after 5:00pm.

Obviously missed my 4:10 appt with the kidney doc but we called him from Doc Shoozenbootzen's office  so had a inference call. We all decided that the various treatments to my kidneys, Pontecellie, Myfortic etc., has not worked.

The phrase "move into end management" was used.

Although this sounds daunting those of you that have been playing along at home will know that this relates to the end of my kidneys not the end of me. As a reminder (to me as well as to you) the kidneys are at 50% and dialysis doesn't start until my kidneys get down to 5% so that a ways off. Also previously we've been told  that I can do dialysis way into my old age, which is good because I've also previously been told by the time my kidney do pack it in I'll be to old to get a transplant.

Pause for self pity. ...... Okay now that bullshit is over....   so get on with it.

First off no one knows how long I'll go before my kidneys get worse. It's a very slow thing right now. Second I heard on the radio about a treatment that was given 24 months to take effect and they had NO sign of success until 22 months in. I take this to mean in my situation that there is still a bit of time for the new drug Jacavi to maybe help although it's a fibrosis drug not a kidney drug.

And hey I'm going for a week long sail trip starting in a week. Joyce is retiring in a month. We are traveling to NorAM later and then Bali. I'll still be able to travel in Aus later so it's all good.

More later
Chris