I'm more than 5 yr out from bone marrow transplant. See other blog for the rest

Thursday, March 15, 2012

Tomorrow is a big day I guess.


It could be a big day or it could be a bad day or it could be a day of “we still don’t know”.
Is this third one really a bad day ….cause I’m starting to get on edge a bit and want an answer…. or is it a good day because by being indecisive, it’s therefore NOT a bad day.

Oh Sorry I should have started the blog by saying g’day. How ya going.

Well it’s going to be a long day as usual. Up at 5:00 and out of the house at 5:30, Sorry Floydd that means only a quick play then locked up all day. We have it timed.. we call the café, Sexie Coffee at Torbanlea and that’s 12 mins to them and that gives them just right time to make brekkie and coffee. Quick stop here so we don’t wear our food, then on to Brissie for 10:40.

Can I tell you a secret about Bluey? She is a nervous passenger so I can’t drive! I offer every time and she just laughs. So it’s a big day for her too. Drive all the way down and back in one day. I worked out that with tomorrow and last month and the time in between she will have driven the 7 hours round trip........... 6 times!

Okay I;ve dance around myself enough. I feel like the fibrosis has been reduced by my new immune system which has be cranked up over the last two months of reduced immunosuppression, In fact I have been without any immunosuprression drugs for two whole weeks now! Thats been 5 years getting down off them!

But I won't know for sure until the blood test tomorrow AM. 

Here's my secret. I haven't had any other symptoms of GVHD which normally would be a great thing.... but what if my immune system does not have the juice to kick the fibrosis? What if my lack of symptoms means I have a 'weenie' immune system. What if my feeling that I have better red cells is just false feeling?

I wont that for sure until tomorrow either. 

Hmm will I sleep tonight.... yep! I always sleep!

I registered for the World's Greatest Shave day before yesterday and I have received donations already. thanks so much. I know people that directly get services from the Leukaemia Foundation and that is fablulous.

There has been a very large number of people getting shaved this year it seems to me. Today at School a teacher shaved her head at lunch time and has raised over 2000.00. Lots of other teachers shaving and coloring as well.

A big shout out to a shy student that was standing well away from the teacher shave event and quietly asking for donations as she is shaving at the public event. I have gone to her web site and made a donation and I think she would be rapt if any body else gave her a bit as well. If you want to; go to World's Greatest Shave and search for Tenielle Simpson in Queensland. You have to be a bit persistent as the search engine is not so hot this year.

more later
Chris


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