I'm more than 5 yr out from bone marrow transplant. See other blog for the rest

Saturday, March 10, 2012

Cooler nights but the days still hot

Yep, here we are again last weekend and the one before we complained about the floods and now it's hot and sultry. I'll still take this over the flood. So I reduced my last immunosupression to half again after the last Dr appt. and as instructed dropped it all together a week ago. Yep I'm off all immunosupression drugs with very little side effects. I'm probably coming off all the rest of the support drugs ( anti viral, anti biotic, anti fungal, and vitamins and mineral. Very happy to be getting off the cholesterol drug as lately they have tentatively linked it to dementia and something else that I can't remember..... Sorry but that bad joke just called out to me. I Just hope that the fibrosis is being attacked by my new immune sys. I think it's working. I have been feeling stronger and wanting to do more so that computes with greater red cells being produced in the less cramped spce if the fibrosis has reduced. Usually I can't really "feel" any of the results of drug changes. Imdon't have symptoms I can relate to. So I'm worried all this energy is just manufactured but my hope. If the fibrosis is not controlled by my own imminence sys then I have to go on to other therapies and that's not so good. So five days till I see doc shozzenbootzen and get the latest blood results. More later Regs get out your iPad to decode the following 43(/ )-006 ?845):-6

2 comments:

Travis said...

Thanks for the update! Glad that you are feeling a little stronger and hoping and praying for the best for you. How do I figure out how to decode that?!
- This is Regs via Travis' account

Chris Olin said...

if you have a ipad virtual keyboard in front of you it will be obvious