I'm more than 5 yr out from bone marrow transplant. See other blog for the rest

Saturday, August 16, 2014

that's better

So I rushed with Bluey down to the Hospital that lies on greenslopes. Unit 33 bed 36. we got here at 10:30 into room around 11:30 didn't see the doc until 1:00, got my canulla at 2:00, got insulin at 3:00, ECG at 4:00, obs every two hours, Blood sugar test every two hours, weight chair at 6:00. ........

Yep this is the place to get some rest!

I did get some sleep but it was in chunks betweeen other stuff.

How did this happen? Well, as you know I've been put off from trying to fix my bone marrow while we go on a quest to fix my kidneys. and we started with cyclosporin my immune suppression of choice and that wasn't working, so we moved on to big lashings of Prednisone alternating with Cyclophosfimide. and we got into the first shot of Pred and it set my sugars off and even when we tapered it off my sugars stayed high so in my blood test on Thursday the blood sugar was at 40.

Now you the average punter have a blood sugar level between 4 and 6.  the Melissas and Mishs, Lisas and Lous, Larses and Carlas are close to the 4 level I think. So to think that others are 2 or 3 points above that and I'm 10 times that. You get the picture. Its really really bad. Damage starts to happen at that point. We think its not happened yet but I'm glad we are getting on top of it.

Also my Potassium is too high, my sodium is too low, my creatin is too high, my protein in the urine is still to high..... I'm out of balance. the Big Boffin was bit concerned and indicated that if I was in his office instead of at the other end of a Skype call he's be putting me into hospital to get things sorted. We didn't want to go into the local so we made dinner, ate it and hit the road.  So here I am at the servo getting my tyres rotated and balanced.


I just got my second jab of  insulin.

My body was trying to get used to high sugar levels, peeing a LOT, other really antisocial behaviours, hormone and steroid changes etc. So my climb back down the sugar tree is going to be uncomfortable I'm told. and I do feel a be woozy right now but its still better that eye damage or extremity damage, cardiac vascular damage. I'm going to be on insulin for a while at least six months for the kidney repair treatment and maybe longer. And since the treatment involves on and off Prednisone I'll be juggling  the insulin levels to try to balance things out.

Meanwhile back at the bone morrow ........what's goin on?  I don't have a clue.

More later from "drama's are us"
Chris


1 comment:

Anonymous said...

Everything sounds to be up in the air right now but from "rushing to hospital" to "Insulin for 6 months" sounds better from this end . Luv ur Bro