I'm more than 5 yr out from bone marrow transplant. See other blog for the rest

Wednesday, May 12, 2021

Hiccups

 It’s been a while, a long while since my last post. I’m 18 years post bone marrow transplant or more accurately post peripheral blood stem cell transplant, thanks to great science, great Docs and Nurses and my brother Derrek Olin. Im also two years poet deceased donor solid organ transplant for my kidney. Thanks to the above and a nameless donor and their family. 


Okay news later.


Things I’ve learned:

(Why on earth is he making another list...he always forgets things!)

My wife is a hero!

You can have artificially Chimerism, the broad definition is two people in one but in this case two different blood types that can trade dominance from time to time. 

Nurses are great humans! 

Docs are the smartest people. 

I know more about my body and it’s processes than I even thought I would . Or even may have wanted.

Doctor Red knows even more than I.

I can make even the sternest faced Doc laughter so hard they double over.(it’s so fun to try)

Hospitals are not designed to allow a good night’s sleep.

Now the news I’m back in one.

For a few weeks I’ve been aware that my AF is not fully controlled and night before last I had a rough night up to pee many times and palpitations. My new watch told me I had periods of very high heart rate. I consulted the state register nurse hotline, my doctor by phone and they all agreed go onto emergency. I presented with high heart rate and they started looking. I got two different antibiotics in case some underling infection, maybe rejection of kidney. Etc

They ruled out somethings last night as my heart rate came down to normal for me...very low, the incorrect data about high creatin was thrown out. In fact it’s 109 the lowest it’s been for me. Scanned my new kidney, beautiful shinning butter bean (not exactly Docs words). Taught about pill cutter so my heart meds can be dosed more accurately. Stress and environment cleared pretty quickly (Apparently getting a new stove with poor directions is more of good stress than bad). 

It is now suspected that my high potassium (bad for hearts) trigged my AF. So I’m eating styrofoam balls coated with medication to trap potassium and expelled it.  I’m also back on the lasix express. As that also gets rid of the dreaded K. (Periodic table symbol for Potassium. 

Recheck my levels tomorrow and out of here, tuned up and better then ever!


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