Well my leg infection is well and truely cleared up.
Doc Shoozenbootzen saw me last week and my blood cancer is not in remission but is totally stable, I’m making all the blood cells I need.
I feel pretty good with energy and no pain.
My estimated GFR (a number on the blood chemistry results which equates to perecentage kidney function) is hovering between 11 and 13 and has been for steady there for a bit.
I’m told that as long as I am above eGFR of 5 and have no problems I can stay off dialysis.
But its time to get ready.
I decided to get a fistula in my arm to aid getting Hemo-dialysis as a back up to my desire to get Peritineal dialysis. But I’m probably not going to be eligible for PD as my tummy is fat, I have a cesarian scar (from removal of my giant spleen (see earliest posts)). So I’m going to prepare to start HD -Self care. That’s where you do the work (prep water, thread machine, purge, start-up, insert needles etc yourself but do it at the renal Unit. This will be followed up with home HD unit installed at our home if two other things don’t happen.
1. I turn out to be able to do PD
2. I don’t get a Live Kidney Donor.
Yes I’m looking at long term loan of one of your Kidneys.
It will be a 6 to 9 month vetting procedure. My Doc will do another bone marrow aspiration (and those of you who have been playing along will recall how much I love this procedure (NOT) then he will take it to the Royal Hospital Transplant team to create an opinion as my my viability as a recipient of a new kidney. Then that opinion will be shared with the PA Hospital Kidney team. If it’s a go at that point the the potential donors will have to “worked up” by their doctor, apparently its not invasive but it is exhaustive. The results of the these tests will be correlated to my results and a determination made as to the viability of a successful transplant will be made.
Long shots.
In the mean time I’ll be on HD as needed. But I asked when the Nurse Practitioner thought that might be and she was hard put to give me an answer but did say that as I’m close to needing it if I get Pneumonia, a bad flu, a bad infection in my leg, etc I will be getting emergency dialysis!
I’m going to be even more careful about my health but it’s looking like I’m tied to Hervey Bay soon.
The cute red head and I are planning a trip to to Tassie maybe to Make hay while the sun shines.
In the meantime I am scheduled for a blood test to find out if I can take the Hep B vax that I’ll need, and I’m waiting in my appointment to get my fistula surgery. Did you know that it takes two months after the surgery to let my vein grow larger before they can use it for HD?. And that as the flow grows in the vein its sets up turbulence in the vein and that produces a ‘buzz’ that can be felt as you feel for the pulse!!!
More later
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