I'm more than 5 yr out from bone marrow transplant. See other blog for the rest

Tuesday, November 28, 2017

"You look flat today, do you want a referral to a Psycologist". " No thanks doc I'll just blog"


Okay more stuff and I'm going to do a whiny first part but DO NOT respond till you have read to the bottom.

Catch up: saw the Nephrologist (Kidneys) doctor on Tuesday at then had my treatment and saw the oncologist later that same day. Saw my GP today.

Its a bit longer than this and more detailed but basically. I'm not going dialysis early in the new year, more like this time next year. But I need to get my plan set up so I'm being referred to the local hospital renal unit to get started but I'm Cat. 2 , so I'll get seen between 30 days and 90 days from now. It's to get my access methods sorted, my veins mapped etc etc.
I'm now down to a calculated percentage of kidney function of between 13 and (20 % -okay the doc said 16 % but since its just a rough guide I prefer to be in denial).

My chemistry results were static since last month so no more loss so thats good. My cancer is going just Jim dandy thank you very much, stable with all my cells being produced. (My problem is that I make way too many of the in-between immature blood cells and not enough real ones. Its not a problem really as I just pee out  the unused ones......oh wait. I'm having trouble with my peeing system.
My kidneys are Still holding in the creatine (bad stuff) and letting go of too much albumin/protein (the good stuff).
Oh and guess what keeps the liquid inside my veins....Hydroscopic pressure that comes from the Albumin etc. so Im retaining fluid in my hands and legs. So I've up my lasic express pills to four a day.  I call them that because when I suddenly feel that I have to go....I've got to GO NOW!

I'm having problems with cramps in the night so the mag has gone up 6 times,

But here's the big thing and its really the smallest thing but I think you'll agree that its its keeping me flat.

I've developed a rash! I've always had itchy feet and hands but now Its on the back of my calves, knees, elbows inside arms, back of upper arm, and rib cage- both sides. Its an overall slight itching like sweating in a wool sweater, type but from time to time (multiple times a day) one of those areas will get "set off" by a scrape with end of plastic bag, brushing against a rough fabric, my own sweat, etc. then its gets to richter scale itchy, I can't help myself and I scratch. Then its game over and it explodes into raised mini welts. Usually i scratch in my sleep and I'm up several time night re washing , re creaming and re cortozone creaming. During the day I'm usually able to resist and I get to the cort cream to kill the flare up but sometimes like at the doctors today I forgot to bring it so I'm totally doing an internal dialogue about not scratching so I guess that makes me flat!

I'm having to reduce hard work as my sweat sets it off, I'm showering at least twice a day and having a bath in Alph kerrie once a day. I'm gong through gallons of body lotion but I'm getting some things done. Joyce is having to gurnie the deck as I can't and i'm barely able to get to town do the shopping and get home before I have to grease up some more.

Okay here's the second part. I feel better for just laying it out in this blog. Please DO NOT respond here or on Facebook with any comments about 'poor you'. I'm fine I'm just itchy.

If any thing you can write about why your day sucks! Yes tell me why you are way worst off then me!
Its all subjective anyway, so we can comfortably go off after and think to our selves "that WAS bad but I'm still the worst off. Its a Win win. I get amused. You get to get something off your chest. See it was working there for a minute i didn't feel itchy until I said chest.

Or you could just session d her or face book with a single typed   .  Its a dot, a period, a full stop. and it just means I hear you bro.

I have to sign off now as I was itch free until my right rib cage flared and now I'm off to the creams.

More later
Chris

No comments: