So we got back from Canada and the US on thursday and friday we drove down to Brissy for appointments. Well bluey drove as she is amazing and powerful and needs to drive.
Anyway I got topped up with intragamm and got some more info about my condition from the Substitute doc who was my resident when I was in hospital so it was nice to catch up. He gave me some info about Klones (cells that are identical, they shouldn't be but in my case 50% are.) and about the number of celss that are mine and that are the Super Bro's (again about 50% I believe) that makes me a Chimera (http://en.m.wikipedia.org/wiki/Chimera_(mythology)) and part of my condition is called Chimerism. Cool eh?
My counts were okay... reds up to 117 which is good for me.
On to see the Big Boffin and he wantd me to start a new treatment for the Kidneys which is, in fact, and old treatment I had for my bone marrow. A course of Cell Cept or MicroPhenolate (sp?). It was last used on me to bridge the getting off of my big Immune Suppression drugs to no Immune supression. It is a little immune supression drug (or that's how I see it, it could be just its a totally different pathway to suppression or the like ...who knows). Anyway its easily tolorated by me, at least it was three years ago, so I'm not worried.
So..... I'm goin into yet another Hospital (PA) to go on a program to get this new/old drug and I'm getting turned on to the Prof for my review. So waiting for a referral now. I don't know how long I'm going on to new regime.
Will let you know When I know.
more later
Chris
No comments:
Post a Comment