I'm more than 5 yr out from bone marrow transplant. See other blog for the rest

Monday, November 5, 2012

What I find out when I'm asleep... or am i asleep?

Okay sedation is a weird thing... I think I'm asleep but apparently I'm hilarious so this time I asked the Doc for a cartoon hammer so he could knock me out, and I tried to get my phone out of my pocket and Bluey had to restrain me cause I wanted to record what the doc was saying.  That was a good idea, Out of It Chris. Because you have no idea what he said until Bluey feeds it to you over the next couple of days!

So here's what he said (but I won't be able to swear to it!) First off he had trouble getting the tube drilled in and through out his shoulder. Discussion at the time about his lifting weights, discussion after with Bluey about getting him to work on the other side because of the room layout he always picks the right hip.

He got the sample and they took extra blood to do a Klienerism test to see if my donor's cells are still there. If there is enough of Rick's cells then if would be worth getting him over and taking his Lyphocytes for the DLI and then keeping him here for a week and harvesting his T-Cells and freezing them for a BMT later.

If there are no enough  of Rick's cells then its not worth doing the DLI and that in turn means its not worth bringing Rick and they would find a registry donor to do a BMT in 3-4 months. That's the timeframe due to waiting lists.

So he said we should plan to enjoy Christmas and to travel but not overseas.   I might get DLI before Christmas, but that is just an injection when I'm at the clinic.  We won't know about any decisions until next Friday at the Skype call.

So my life may be complicated again. We are starting to think about where we could live in Brisbane in Feb,March,April and on for 6 months.  Bluey will once again be the super hero  and I will just sit around doing what I'm told.

There are a whole bunch of question about the different donor but I will leave of the line until we know thats what is planned.

Hope that helps keep you all in the loop. Sorry I haven't got this down sooner but it all could just be a dream.

More Later
Chris

3 comments:

Anonymous said...

Derrek(Rick)asked- Does this mean he may be needed before Xmas for the DCI ?

Anonymous said...

Derrek(rick) DLI not DCI sorry

Anonymous said...

Thinking of you & Bluey. Your Pomona Pals xx