Floating toward the deeper end of the pool

Had another video conference with the doctor, who had to drop his video because of the poor connection.... is it still called a video conference if only one party is visible?

I had further blood tests done early last week and the doc did not mention my liver/kidney results so that is good I guess. But my Haemoglobin was down to 80 (reminder that males are usually up around 125 to 140, can't give blood below 120, have to get blood below 90) anyway its a worry as to where my cells are going. Doc Shoozenbootzen says it could be the progression of my disease or could be because my immune system is kicking in. But he needs to know .... so now I'm also booked for for my regular intragam on Thursday along with another Bone Marrow Aspiration (BMA), some whole blood, and the start of my interferon. It may be a long day as the intragam takes about 1.5 to two hours, the blood is two hours per bag and the BMA about 1.5 to 2 hours.

------ remember this symbol means that there is stuff you can ignore following, but it may have good bits none the less. Bluey is my wife and is so named not because she has the blues, although that happens from time to time, but because she has the most beautiful red hair that science can create. Its an Australian thing. ------

Bluey is totally looking forward to this trip because of what was revealed in this half vid conference. The continuation of the interferon injections will be done AT HOME. Yep Bluey gets to jab me. I complained to the doctor that any infraction in the previous days would result in an unfortunate,  for me, choice of injection location!  He laughed so hard and then said " Yes I would imagine that a scrotum injection might be painful!"

I'm having to manage my own case more. I'm keeping track of what the doc says but I have to be talking to the receptionist Chills, the practise manager, Michael, the clinic booking officer, Scots Queen,
The staff at the pathology lab here etc. This is tip for anyone embarking on a program like this. YOU MUST BE THE MOST INFORMED AND PROACTIVE PERSON ON YOUR CASE. UNLESS YOU HAVE A BLUEY, then you can totally relax!

------I have always disguised the names of the medical practice people because I don't want there to be any issues about what I say about them or what I say they say.-----

Anyway at least I will be starting some treatment. It has been a bit of a worry for me (what, Me, Worry?) that we know my fibrosis is back back but we have not started any of the treatments. Interferon, DLI, Transplant. I tried to think of it as good news that the progression is so slow we don't need to rush but I'm starting to feel like I'm on this floating lie-low on the surface of a nice pool... but that pool is starting to tip down to the deep end and there is just the very slightest feeling, barely perceptible, of current flowing to the deep end.

So better hand me a margarita and lets see where this ride takes us!

more later.
Chris