I'm more than 5 yr out from bone marrow transplant. See other blog for the rest
Sunday, June 24, 2012
More Sunday calm
Well I had a week of drinking lots of water, blood tests Wednesday and skype call on Friday. Doc Shoozenbootzen said my reds were back up to 95 still a bit low but way better then 78 anyway he is still puzzled by where my red cells went to. Add to that my kidneys are crap again and he wants me to see my local GP to get a grip on that.
I'm not going on tHe trial.
They are starting with different people and the doc is " pissed off" so I'm going to start my own trial on one of the regular interferons, not the tessellated variety. There is some misremembering here about how I get it, (at local hospital or self administered). And we will be meeting on Skype more often.
So I start in July on the new treatment and a bit glad as we have been finding new things to try but we haven't been trying anything!
So at the end of the conversation the doc gets a funny look and announces that maybe the missing reds and some cleaned up whites might mean that my immune sys HAS started up to kick the fibrosis on its own! Knock me over with a feather.
This is still just a theory and I'm still starting on the interferon and the doc is not big on false hope But still....
More later
Chris
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