Day 231 review

Hi there!
I saw Doc Schoozenbootz last Friday which was in fact day 231 so today its day 234.

He looked at my liver levels over some time and showed us that they had spiked up suddenly about 2 months ago and have been dropping back towards normal since then, when he prescribed a slightly higher dose of the immune suppression drug. That confirmed for him that I do/did have GVHD in my liver. We then talked about how long I will be on the drug and he related the patient history of another fellow that has been on it for 2.5 years, and he had a little GVHD in his liver too.

So we asked about how I manage all this and got some surprising answers. For instance I have been getting antibodies for various diseases commonly inoculated against as part of the intra-gam I get monthly. So my recent accident with barb wire was not such a worry.
-------For me but for Joyce it is still a worry!
I will be able to get a tetanus shot anytime. My immune system is low but not knocked out and I will probably be able to go back to work at the end of January when the new school year starts.

So its a bit of a mixed bag. I have GVHD and the protocol says I'm on the drug for 3 months after that so its on for a while, but even while I'm on it.... and I quote the doc "you can't wrap me in cotton wool." That's a bit of relief for me as I was champing at the bit to work aroung here. Joyce is worried that I'm going to go nuts and get hurt or wear my self out. Time will tell but I will try to keep control so that I don't get an infection.

I'm still only having one drink at a sitting and only occasionally, I still don't eat leftovers, we watch where we eat out, I eat only fully cooked from fresh when I'm out. I don't eat shell fish, prepared meats, or from buffets (from bain maries) WE are on a modified liver cleansing diet. lots of water, fresh juice every morning and very little red meat. Reduced fats and no saturated fats if I can help it. I'm trying to cook more fish but one of us, and I'm not mentioning her name, is not a big fish fan except for Salmon but that can get boring. Those of you still living on the Prairies will know that a good feed of Salmon is not be scoffed at but 2 or three times a week is a bit much and there are so many great reef fish here..... I'm working on good ways to prepare other kinds of fish to make it more accepted but it's early days. Some of you may have had the pleasure of my cooking and some of you may have been present for some of my greatest disasters in culinary experimentation. You will appreciate what said woman is going through while I find her alternative fish experiences.
------- This would be the point where you all chime with posts relating some of my greatest disasters.

Anyway other then that we are good.

More later
Chris

I feel good and strong so its just to get my test levels up. next doc appt Nov 30.