I have started the end of days tests! Did big bloods on Tuesday at the hospital then gave more blood at the clinic. I felt seriously depleted as the usual test is three or four tubes and the final is about 12 so that's 16 for the day!
Doc Schoozenbootz gave me a "good....very good" on my bone marrow biopsy that I did last week. I still have to get the results of the DNA test (one of the 16 tubes) to see if it is MY good...very good, or RICK'S good....very good. he went on to say he wants us to see him after his holiday before he discharges us so that was adding a week to our stay. In a late development we phoned him back and asked if I could go to Hervey Bay for 6 days (he had previously said we could go for the weekend) and he said yes! So we are basically on track and this is the track.
-------you crazy jump around guy, you haven't finished with the whole doing exams metaphor! Clean that up!
Okay I did my skin exam yesterday and they took three biopsies this time. And because I have such dry skin they have ramped up, by one, my skin disease diganosis. For those of you playing along at home, you'll remember that when I went in the first time Doc Mole said I had a minor disease called Ixthyansis Vulgaris (sp) and now since I look like a giraffe.... no kidding that's my leg in the picture....I have an equally benign but "far more rare" disease call X-link Ixthywhatever. And get this, he wants me to smear myself with Petorleum Jelly! The Pharmasist couldn't keep a straight face as she told me I should put it on several times a day. I'm thinking a Greased Chris contest will be added to the July 1st games!
I also did my ECG and chest X-ray yesterday. So all I have left is my dental exam and deep breathing test next Wednesday.
-----okay now back top the track
We finish up tests next week and pack then Gene comes down with the truck on Friday and we load up then we drive in convoy back up to Hervey Bay. We have a big whoop-up for July 1st Canada Day. Then we come back for Friday to get the final results. Then we come back every fortnight to see the Doc and get intragam. etc. then at some point we start coming every month.
In September he will start reducing my cyclosporin and I have a 50/50 chance of getting chronic GVHD at that time. I may have to go back on cyclosporin for longer. I won't be returning to the high school till after a check in January; my imune system is still down and won't be coming up till at least September and he wants me to not take any chances on infection.
So we have a busy week coming up and Jo is staying with us Tuesday as she is in for a meeting, so it will be a whirl wind week.
more later
Chris
3 comments:
I'm here to say that the leg doesn't look as bad in person! I have suggested that we could get his neck stretched to enhance the overall giraffe appearance.....
Well we can't wait to have our very own greased up giraffe back home.... the count down is on
p.s mum filmed the dance concert for you!
You've got to be kidding me...and I thought I had dry skin! Christopher...I'd decline the neck stretch although I'm sure, as always, J.C. means well :)!! Have a wonderful 6 days in Hervey Bay...I'm pretty sure it's going to seem like heaven...Love ya... L&P...baby Boomer, Zoe and bad-cat Cassidy...
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