I'm more than 5 yr out from bone marrow transplant. See other blog for the rest

Monday, March 19, 2007

With out further ado it's Chris online at radiobed 24 5cRBW

It's really me in my hospital room. My counts are droping nicely and I haven't so far been ravaged by mouth sores or other things. That may still come. My neutriphils which are the imunesystem guys are stilll at a level that make me not "neutrapenic" See that door behind be It will be closed once I drop to that level.

P.S. I have a day nurse turned night nurse tonight that is just great.

Here's a great wallop of stuff that I had written over the past few days for when I got it online.

It’s Friday morning and I have had a rough night.

Wednesday (day -2) they started the Malfilan the final big chemo drug, I still was feeling none of the expected side effects but that night they started kicking in, nausea being the big one. Yesterday (day-1) I slept for most of it after an initial surge of feeling better that got me out of bed and showered and into casual clothes. Not eating lots and slept right through dinner. Was a really disturbed night with lots of new drugs added and my infusion pump beeping many time for attention, on top of that the drugs made me more nauseous and gave me a head ache so I was up a couple of times to fix that.

This morning (day0) I forced myself out of bed into the shower and I ate some of my breakfast. Jane the nutritionist was in and recommended some energy drinks the drinks lady brings around.

My back is sore and my nose is runny but the worse is the nausea and I was holding water a bit but seems to have moved on. Maybe not.

Nick, Lara, Chrissy, Georgie, Heath, Jill, Mary and the others have been great at nursing me and I feel in good hands

Today is day zero I get Rick’s cells this afternoon, Joyce is bringing a cake as it a tradition to celebrate this a new birthday. So I’m a golden pig according to the Chinese calendar. My second birthday is March 16th, which make me the same month as Derek! His is on the 27th.

That was written in the morning of Friday day zero. I slept much of that day with Joyce, Jo and Gene watching on. The preservative in the cells comes into my body as well and I don’t think I was imagining slurp backs of saliva in others as it made my body smell like roasted corn. I couldn’t smell it but everyone else commented. The cake was carved and enjoyed in the patient lounge but I was asleep, what with trying to balance the headache tablets and the nausea drip, injection and tablets I couldn’t keep up.
I did eat a piece yesterday, Saturday (day 1) I still look like the hulk from the Fantastic Four. but they started giving me redone for pain and an infusion for nausea so that is better I took several walks yesterday which felt good.

It seem that the rest day (day minus 1) just means that it’s a day to let the Malfluine work the have infused me with Calcium, Lasics(to keep the water working), Cyclosporine (to drive down my immune system, Magnesium (replacement), antivirals, antifungals, antibiotics. My nights are filled with beeping when one of the above is finished. Actually the main amount beeps the they set out and additional flush amount they when that beeps they set-up a maintenance drip at a lower amount to keep the line open but usually there is a new drug waiting to go, so every time there is a finish the sodding thing beeps. Wait for it ………I have four pumps going! Four time the beeps. I think Last night I slept through a couple.. yeah!

Today is Day2 which means among other things I get off the infusion lines for a couple of hours but I also get a folic acid infusion to stop one of the chemical put in yesterday. This happens again day 3 , 5, 7 (in with the bad one day out with the bad the next day.

It's nin at night so I sort out the time frame errors later good by from Day three
more later
Chris

4 comments:

Bluey said...

Woo-Hoo! You are up and running! I am so proud of you, Magnificent Chris!

JC

Bluey said...

Woo-Hoo! You are up and running! I am so proud of you, Magnificent Chris!

JC

Unknown said...

Hello my Brother!

Glad you're back on the blog. Even better to lay my eyes on ya. You look marvellous darling, absolutly marvellous!

Hug you,
Melissa

The Shiny One said...

I shall draw up the battle analysis so far.

Chris is awarded 6 points.
1 point awarded for trend setting hair style.
1 point awarded for smelling like cooked sorn
1 point for sleep
1 more point for sleep
2 points for blog enties

The Chemo is awarded 1 point
1 point for making Chris miss out on Cake.

I think it is safe to conclude after this detailed and theoretically and evidencially unbiased battle analysis and acount that YOU Chris are winning.

WOOOOTTTTT!!!!

Much love and wishes to grant you cake.

Sian.