I'm more than 5 yr out from bone marrow transplant. See other blog for the rest

Tuesday, May 27, 2014

Well here I am

I'm at the Greenslopes private Hospital in lovely Greenslopes, Brisbane Queensland. I'm here be cause Doc Shoozenbootzen booked me in to see a new boffin doc for my kidneys. The nurse recognized Doc Boffins name and apparently I'm on the right kind of ward, but I don't still don't know what kind that is. She, the nurse, doesn't know why I'm here exactly, I don't know why exactly. I don't even know when I'm going to find out what up!

the real problem is the menu left on my table is yesterdays so at 11:27 with no staff visiting and now info and not even a menu form that is up to date.........I'm not going to get lunch!

Many of you know that to stand between me and my food ....and more importantly food timeing is to get trampled!.

Hurray, the dietician came in and although I don't get to choose, I'm due for lunch! and I'm choosing the rest of my meals now. See, just give me a schedule of food and I'm set! Now my meals are set they can do anything to me.

I think I get to see my new Doc Boffin this afternoon but not sure why I believe that but I need to hang my beliefs on something so that will do.  My Nurse has taken my blood sugar and that's good I've signed some more forms. I guess that now I've signed in there may be some actual action in the "telling Chris what the tests are" front.  Maybe the doc will show up in the middle of lunch!

more later
Chris

Sunday, May 18, 2014

Kidneys on toast

Some people like offal. I reckon its awful. some people like kidneys on toast.

My kidneys are toast. Maybe they are just lightly browned or maybe they aren't coloured up at all just slightly dried out.  They are still working and they are taking out out impurities but they are letting proteins go out as well and that's not good. So it has be decided that I much got to Doc Shoozenbootzen's "Kidney Guy" so far this guy has no name real or alias so I'm thinking Kidney Guy work for the time being.

They wanted me to go into hospital on Bluey's birthday to have some tests including a kidney biopsy so I'm guessing the involves being under general and having those hand grippy stick things stuck into my gas inflated abdomen, getting a snip off the kidney and they waiting for results. Doc S-B says three days. I've put a hold on that a bit and hope to get a consult with KidneyGuy before we go on this.

Doc S-B Thinks my Diabetes  my be the cause of all my leg issues. I've been getting good reading in the morning lately so not sure thats it. I did get a high 20 with my blood test at the last intragamm appointment but that was just after eating morning tea sop not sure that counts but the Doc is freaked.

So I'm on new blood pressure meds to try to reduce the leg swelling side effect. my be too early but I notice less night urination and the legs look better. My knee started hurting a bit last week but has improved and is the best its been in a long while so that med change may be working. I'm also using a TENS machine at home and ice packs to some good effect.

I'm pretty sure that we will find a mechanical solution when I finally get in to see the local arthropod. I shall not call him Leprechaun despite being irish named and short. I prefer Window. This is because his last name is a shortened version the cross bars that hold the glass in a multipaned window. Doc Window has so many people lined up to see him he can't get to me till August. I'm thinking this is because he can't operate on tonnes of folk in a week so why see them?  I'm on the waiting list to get in sooner. Next time I'm in big pain with the knee I'm drop in to see the appointments person and moan and groan in the waiting room and I bet I get a sooner appointment. Anyway Its all good today so no worries!

Sun is out, not to cold, but cool. Floydd has walked and is now surveying the valley from his perch on the deck. Bluey is still sleeping on this, the first day of Birthday Week.  I can't feel any pain in my knee (and it's actually bent a bit under the desk!). I'm about to go put the coffee on and start making waffles.

more later
Chris

Monday, May 5, 2014

Something Pithy This Way Comes

or not…

It remains to be seems whether or not this post is pithy but I'm working on the "it you say it it will be so" school of live happenings, so maybe it will be good.

or not..

Anyway to the topic of today's dissertation. "If you have a bad knee and and you can't get in to see the Orthopod for 3 months , should you cut off your leg".

I'm still having issues with right knee but I have my own TENS machine and I'm looking at alternative therapies with magnetics, So far the the best is Prednisone but that has a WHOLE set of problems that go with it. I'm cycling down now to a very low dose to see if I can get it to still help but reduce my other side effects.

My blood pressure medication is also being changed so that it might reduce the swelling in my legs, and we just found out that Prednisone may also cause swelling. But I'm taking it to reduce the pain and inflammation in the my knee, when its gout in there that's causing the problem!

My kidneys are leaking protein…..

BUT I feel real good! No really I now have appointments with a Dietician, Phyistherapists, Ortho Surgeon, GP, and Oncologist to try and figure this out so surely they will do so. In the meantime I bumble along and I'm getting so many things done around the house because I'm so hyper.

Not much Pith but some sharing.

Maybe when there's

More later

Sunday, April 27, 2014

Daddy's Little Helper

Ride on mowing
Push mowing
Clear out dead banana trees
End of day one on knee that works and doesn't hurt.
Weed new little gardens
Water new little gardens
Distract flooded so he does take off the the neighbours
Water frangipani
EITHER take out the fast food containers to the shop for hardware sorting
OR get that garbage out of the house
GUESS which voice was mine and which was Joyce's
Distract Floydd
Paint first coat on "Healing Garden" sign post.
Make lunch
Accept " this is lovely honey" compliment
2 coat on post
Dig out foot of foundation for new hot water tank pad.
Form up foot for concrete
3 coat on post
Distract Floydd
Extend new drainpipe from new retaining wall
Make nifty adaptor for same
Clear weds from garden shed
Chop weeds and compost them
Distract Floydd.
Come in for arvo smoko
End of day two.....

Hey if I have to take these steroids I might as well get some use from the hyper feeling!

Saturday, April 19, 2014

Life's little trails or trials?

I'm trying to be lay back but I'm getting more and more pissed off about my leg.

I've been having more problems with gout and my kidneys. Compounded by high blood pressure. I went on meds for the BP about two months ago and I've had two really bad gout attacks in my knee in the past 6 weeks. To the point where I'm on Prednizone you know that steroid with the side effect of divorce! I get real rangy on it.

The good news is that it's a 6 day course so the end is insight. But before the Prednizone I was on Endone for the pain and this second time it was not even cutting it fully. I had a couple of "Joyce, just get an axe and cut it off days.".
This is all complicate by my kidneys "leaking protein into my urine" and having to have ultra sounds on my kidneys and the veins. And last time I saw Doc Shoozenbootzen. He whisked me off the the ima going place in the. Basement to get a Doppler ultrasound of my legs to rule out DVT! I looked at the tech and he looked at me and I said "we have been hear before" he said "yeah it was the other leg leg last time" that was last year when I started having gout issues. Anyway no DVT. Just giant leg.

I'm also getting my local GP to get an MRI of my knee and she agrees that maybe I do have some miniscus damage and that provides a site for the crystals (uric acid..gout) to attach.

And I have an appointment with a dietician to sort out gout menues because the internet would have me eat nothing at all.

I suspect this all has inter related Interactions and I'm sure we will find out wha5s what soon but in the mean time it's a pain in the knee!

Even when I'm better I'm trying to rest the knee and get it up to reduce swelling so the yard needs cutting and the retaining wall under the house is not advancing. Frustrating!

Well this was quite a pity party, whine Fest wasn't it!

This has been keeping me from re launching Big Knock.

But I have been mentoring a lad in year 3 who is a bit of a handful and I've been reading with two year 4 groups as part of use Mentoring Program at the neighbourhood centre. And I'm the logistics leader to a gro,up of self help Leukamia patients and their spouses. We aren't official with the foundation yet so I call it the Not a Support Group.

More later
Chris


Sunday, January 19, 2014

Catch up

I have been reminded by my pal Gayla that I need to be more up to date with my posts.

So I have have been back to Brisbane to see Doc Shoozenbootzen and to my local GP and we have been on a kick to get my kidney, gout, swelling, eczema, itching and liver balanced and working properly.

So my swollen left foot (for the past two months) has started to go down. Usually its downish in the morning and blows up during the day. But now its only blownish uppish  a bit later in the day. And I'm started on a drug to help my gout but it puts a bit more pressure on my kidneys so we have to start easy but I have not had any of the possible side effects.

I'm going to try to stop going on about the details of my side effects, gout, eczema, swelling etc. because the main issue is that my bone marrow has shit in it and that is slowly going away, we think. I'm worried that these little troubles are keeping my from the the great exultation I should be feeling at being alive and getting better in the bone marrow department.

I'm also going to, for a moment, reflect on the 37 pages views I got from the Ukraine. hmmmm.

More later
Chris


Tuesday, December 3, 2013

feet who needs 'em

We are at the end of our three week holiday to Canada and the US. I have spent most of th time trying to get me left foot to coooperate.
first I had gout from dehydration and them i was walking funny and my achellies tendon flared up and now that those are better I'm dealing with the tenors/connectors? on the outside being tender. but they are healing and just stiff sore not ripped sore so as soon as get home to my Physio the Queen of pain. (she's just a tiny thing but sheesh can she hurt me). I'll be right in a few days. then its back to the  diggin holes and filling them with concrete.

more later
Chris