Who's the best blood maker on the Planet! Just saying...

I just found out that, here in the 21st week without transfusion, my red count is 134. That's normal and I haven't been 134 in over a year. I feel pretty good.

More of the same...all good

So it's been 16 weeks since my last transfusion.

Still a mystery but no ones talking about it any more just "your bloods are excellent" then on to other topics. I, on the other hand, would like to know why.... It's the geek scientist in me I guess. I just have to be happy with "Every patient is different...".

So I got my third batch of DonorBro cells; this was x times 9 concentration.

 I have a cold, the second in 4 weeks and I had gout last week but nothing connected to GVHD.
----- pop quiz :What does GVHD mean? Yes that's right Graft versus Host Disease. Where the new immune system in this case bolstered by the Donor Bro's Lymphocytes attacks my own body because it sees my body as foreign to its self. Also in this case we hope that the immune system will rear up and attack the fibrosis inside my bone marrow. ------

So no sign of that yet.

In unrelated news the downstairs addition has plumbing roughed in and electrical due next week. Plaster boarding the following week then water proofing, tiling, painting, final fit of elex and plumbing and its done.

More later
Chris
PS I just miss spelled my name hris and it auto corrected it to Harris not Chris weird eh?

Things are a burbling....

Okay lets see its been 15 weeks since my last transfusion.

two weeks ago nearly I got told my third batch of the DonorBro Cells were getting postponed because my "kidneys were crap" AGAIN. (good now though) so I of cousrse didn't pay much attention because sometimes I'm just like other humans and I'm a BAAAAAAAAD Patient. Anyway I didn't twig to what else may happen so I worked at rehydrating but maybe not fast enough.

I get to working out side and forget to drink water, I take breaks and drink.... but around here at my sweat rate, you have to drink every 10 minutes or so. Anyway...

The week after on the Thursday I start to get a pain in my foot. Gout brought on by dehydration I guess but still hurts so I'm hobbling around on more drugs. Saw the local Doc and sawThe Physio. My Physio is this tiny lady who can lay  a giant man to the ground with one or two fingers applied in the right spot so I was surprised at how gentle she was. It s still hurt like freaking hell but she was pretty gentle..... for her.

Staring to feel better now and that's good as we are off to

12 weeks without transfusion

Okay its totally freaky but I'm making red cells like crazy. My last blood test results, last friday were 117. Admittedly that's down from the 127 the week before but still its good. Still no medical theories as to why... well there is my theory and  that's 'I have made a demand on my blood, from the work under the house, but that's not very sound science.  But then again there are no other theories put forward at this time so that's the current thinking!

We got the go ahead to plan a trip to NORAM from Doc Shoozenbootzen.  We have worked out time frames so we booked tickets. June 17th leave and back on July 10. Time in Calgary, Oysooyous, Kelowna, Victoria and Seattle. So John and Cathy, Rick and the Kids, Marge, Heather and Nick, Jim and Irene, Jo and Rick, Peg and Lynn can expect a visit and Joe and Gabe can expect witnesses to the wedding. Joni,John,Marlene and Nicole can expect guests. Calgary supporters and friends can expect a party.

Unless we change our mind then its all up for grabs.

more later
Chris

Its been six days since I got my donor Bro's cells (Sung to the tune by the Bare Naked Ladies)

So six days and I feel fine, no sign of GVHD yet.. Who know maybe these Lymphocyte cells are not yet kicking butt. I feel great though. Got lots done on the new stuff for the Big Knock. Am getting ready to launch the new stuff but I need to get some people rev'ed up first. I have a knock cooking as well but my sister in law told it to me and I can't remember the details. So I either have to do a sense memory thing to try to remember........nope .... or just call her.
more later
Chris

More Cells on board

Went down to Brisbane yesterday and got another batch of the DonorBro's cells.  I get them in increasing amounts I think I got 3 times the first lot. and next is 9 times but that may have been some thing I remember about something else. Any it still wasn't a huge amount  because as they were flushing the little bag I realised the cells still hadn't got down the tube into me yet. That happened on the second flush and almost immediately I was breathing out the chemical that they use to cryovac the cells with and it smells like 'nibbles corn' according to Bluey!

Got blood test results and I'm back up to 117 that's ten weeks without transfusion which is so excellent. No sign of GVHD yet. Remember we want a little of the Graft Vs Host Disease so it attacks the Fibrosis.

More later
Chris

More good news

So its been 7 weeks since my last confession ...opps I mean my last transfusion.  and we got the latest blood test results last night about 6:30 PM from the the hardest working practise nurse in the business.

She is really nice...... What?.... You don't want to hear how nice she is, you want the results Right NOW?..

Okay so she is hard working......

Just kidding.

120!

Yep that's not DOWN.... that's not even EVEN...... that's UP from the time before. I am seriously making my own cells. Wahoo!

That is all
more later
Chris