Sunday 10-7-22 Day 12

 So its been 14 days since I checked into Hospital. My counts (for neutrophils dropped to less than 0.01 or as my coverdoc said today the machine and or pathologist “couldn’t even find one to count”. So there we go ! Now we Wait to see when they come up again. 

In Radom news bits:

My plan to revolutionise thestorage in the end store room has fallen on fallow ground. I notice early last week the box of fully wrapped (read slippery) full sleeve gowns was open and they had  poured on to floor. Individual wraps so no foul. So I refined  an idea, mentioned it to nurses and even to a nursing team leader. Great feed back! Hers the idea. It seemed to go great until I said I could do it for you all I need is some tape and a box cutter.  Lots of laughs but no box cutter showed up. So that dia gram is taped to the next box down the pile waiting to see if there are any takers.

In other news, I had a hankering for a chocolate milk shake. Where are you going to find that in a hospital.... on a Sunday? Nowhere! So I ordered a chocolate brownie! Chocolate milk, custard and cream for lunch. Mashed the brownie in the custard, added that to a spare water pitcher less the water. Added I cream and choc milk. Shook and shook. It was okay and cool. It really needed a blender as the fudge choc brownie was mostly a lump in the bottom of the glass.im going to have a little chat with Polly’ the pharmacist for our floor and see if they have anything blenders down there!

More later

Chris

Day 10

 Bit of a different story. I’ve had a tummy bug infection that had to be indentified before it could be treated. That took three days and 

All the while I had sleep interrupted, pain and horrible runs but it’s identified and I’ve had one of two pills to fix it better already today. 

My blood counts the good ones are just about zero so I’m in my most vulnerable starting today. They expect them to rise on Day 21, I’m making book on day 19.

Had visitors from Boonah and Seattle this morning very happy to see them. May get a visitor this arvo.

It’s just a waiting game now

More later

Chris

Day 6

 I. Totally in control of nausea, tick✅. No pain✅.energy✅(Thanks to speed). Good appetite ✅.

I’ve finished my 3of 4 chemo2. Chemo 1 finished on day3. And had a good visit from Doc Shoozenbootzen. And my Leukaemic cells have gone, on one chemo to seal the deal. 

Still have to see my good immune cells( neutrophils) drop to zero wait nervously for them to start rising again, about day21 but I’m predicting day 19. Call your bookie! The other.... mouth sores,  diarrhoea, hair lost, weakness etc still to come but I’m thinking it might be milder then predicted. 

More later

Chris

Day3

 This is the more complicated part of my treatment. I get one chemo drug on day 1,2,3 and the other I get Day 1,3,5,7 but thahta on a timed pump and I get it at 6pm and 6am. So actually the second half is on Day2,4,6,8. With me so far. I get iv push lasic, anti nausea. I get belly needles of blood thinners. I get pain meds as needed.

So far so the biggest problem is getting my back to stop hurting so I can sleep. Two visits by physio with exercises and hot pacs May have fixed it. Still eating and moving around myself ecepttoday as I have a bit of fluid on and it made me cough and I had a sore throat so they are testing me for covid etc. and I’m in isolation.

More later

Chris