I'm more than 5 yr out from bone marrow transplant. See other blog for the rest

Sunday, April 21, 2019

Good Friday Update

Its Good Friday as i start this but its now Ester Sunday.  We are staying in Brisbane for the Easter weekend. Bluey is having a problem with her leg, due to an injury last weekend she has a flare up of cellulitis.  Its making her leg sore sometimes so we thought not being in the car for several hours would be a good idea. Also she had to go into the doctor on Thursday arvo and that meant we would have been in real heavy traffic Thursday arvo or Friday am and that’s not fun either so we are staying put and getting a lot of rest.

Its also a good idea to rest and hibernate this weekend because I’m having some issues. I haven’t have a migraine in many months but I’ve had two in the past week. I’m also having some issues with my water weight and the relative balance in creatinine. It seems that if I get dehydrated (sometimes on purpose by taking Frusemide) then my creatinine goes high. They worry and then I stop Fruz and my weight goes up and then my Creatinine goes down. I had to buy a scale for weighing at home and we’ll see whats what.
Not sure what we are doing about the migraines. The good bit is that about ten years ago I stopped getting pain from them I just get the visual Aura and then an weird feeling.
Now we are going to clinic on Tuesday as Monday is a holiday. Then I go to clinic again on Wednesday as its the day I was supposed to go home. But this little wrinkle means that I’m gong to clinic on Friday after Anzac Day and that I might get discharged that day and return to Hervey Bay. But if they aren’t happy with how my water is working it might be delayed some more. I think its a very minor wrinkle but we'll have to see.
So I made a chocolate pie with stuff we had here in the apt. Its not sweet as I had no sugar but the chocolate I used was sweetened.  It didn’t thicken as I only made it like custard and I didn’t have enough cookies for the crust so I used rice bubbles to extend and so that’s not too sweet either . So its like pudding on a crunchy bottom, sounds delicious doesn’t it? Bluey says its the one thing that I have made that is truly terrible.

So my project on this rainy Sunday is to make Nanaimo bars for the gang at the clinic on Tuesday. I actually bought supplies for them. Bluey is laughing really hard because we don't have graham crackers in Australia and we don't have Birds Custard powder readily accessible either so my plan is to use different biscuits for the base and make custard from scratch. Hey I like a challenge!