I'm more than 5 yr out from bone marrow transplant. See other blog for the rest

Tuesday, September 18, 2018

Monday, September 17, 2018

Another turn

Yep I’m in St Stephens Hospital. Checking my heart to had a high heart beat and it’s irregular.
Edit: It’s arterial fibrillation maybe, or could just be an electrolyte balance thing. If it’s AF, I have to take meds.
Edit: I was at dialysis and it it ended with me having a weird feeling  and boom . I’m taxiing across the street
Edit: I’m going to be another night as they haven’t paid for the admission with just one night. Or it could be that I can’t see the specialist until tomorrow night.  At least I get to order my own food! Thanks everyone I’m comfortable the food was okay. No pain slightly less weird feeling so should all be good.

Tuesday, September 4, 2018

Got my letter

first off the report:
Had a bit of a turn in the chair last Wednesday night. They had thought I might be a little heavy with water weight still, so they thought to challenge down to 87 kg. But I was faint a t the end and had a blood pressure of 84 over 24. But lying flat and a sip of water fixed me up. So my dry weight has been set at 87.5!

I’m off ALL blood pressure meds!

4 weeks ago my plattlettes were up to 875 that’s higher then it’s been in 20 years. Those of you playing along at home will recall how this all got started with high platelets on a blood test in 1989! So two weeks ago doc shoozenbootzen put me back on the first chemo I ever had. Should be okay but it’s a puzzle as to why they are up. On my way to see the doc today and we’ll see if they have come down.

I got the letter from the PA hospitals in. Risbane, the transplant unit! In October I’ll go down to talk about getting a transplant. Still early days but I guess the tests went okay.

More later
Chris