So just coming home from Brissy. Did the 4 weekly trip for treatment and its all goodish. I'm half crap but stable. I did a pot of pee two weeks ago and the results are in. The protein my kidneys are leakng out has significantly reduced but its still too high, but its plateaued! My reds were at 107 which is good for me but more importantly its not down from last time so that means the Aransp is working at keeping my reds up. So thats all encourageing but to top it off he started telling me about a new drug that normally they would use it on my MyleoFibrosis except when the spleen is out (like me) except when the Myleo fibrosis is prominent (like maybe me)! So, with me so far?
So for those of you playing along at home...guess how we find out if I get to have the new drug...?
Yep im booked for yet another bone marrow aspiration (BMA). Remember how much I love this procedure? Its esentially a 1/4 inch core sample of my hip bone. Two times ago Doc Shoozenbootzen hurt his shoulder because my hip bone is so scarred up! We have since been doing a flip on the bed so he can work on my left hip.
Its all good because of Madasapamine (sedation)(Dazzle)! The Doc and I have a Deal ... He can hurt me as much as he wants, as long I'm not there!
So thats my life, How, you doin?
More later
Chris
