`
I had a long talk with my nephrologist, well a half hour but that's long for him. I aksed him how i was going on this treatment because I know what the levels are and they are not all that great.
I told him I know that the docs don't like to speculate about the possible outcomes but really what's the go.
He said "That's like asking me to say what all the outcomes of chess game are after the first move. Boris Spatski could but not me".
I did find this out.... and keep in mind that this may change.
We talked about my kidneys are currently half crap. that is to say they are doing 40 to 50% of the effective job they should be doing.. The treatment I'm on (Pontecellie Protocol) , if it causes change the change will be in any of three time periods 1. Now. while in the treatment. 2. Immediately after word, 3. within a couple of months of the end of treatment, so we won't talk about future treatments until the new year (maybe Feb March).
I may be doing dialysis in 5 to 10 years if nothing else works. I'm a possible prospect for transplant now because of my age but in 10 years I won't be. He has a bunch of ninety year olds that are dong quite nicely on Dialysis so not to worry and that the science is getting better every year.
He was firm in saying that although the current treatment has not made significant change at the moment we won't know till later and that there are other treatments lined up as well.
Now to report what doc Schoozenbootzen said yesterday after looking at both my bone marrow and chemistry results. " I see stability" " Although there is not significant improvement in your kidney chemistry there is also no further decline, You have stopped getting worse" . WoooHooo I'll take any good news including at least you aren't getting worse. I find this to be hilarious but I do have a big black humour reservoir. He went on to say that my MyleoFibrosis is stable as well still there but not causing grief and not screwing up my blood counts to much.
I'm reflecting now to all those teachers that said "Chris could do so much more but he performs at an average level." My bone marrow has adopted my style and is performing at an average level. (I guess technically not even average cause that would be like all you people with fully functioning blood cells). Anyway I'm puttering along getting Intragamm each month and trying to be a bit fitter.
I've been going to aqua exercise class now for three weeks.will probably start in the gym in the new year. its good. And I have a lot of projects planned for around the house so should be able to keep fit that way too.
Oh and that chart I made up of the doses I thought I would get while in Greenslopes. I got over 50% of it right those I missed were very close. So I'm pretty proud of my knowledge about my own insulin production.
More later
Chris
