Okay its not quite a hypo bui because it was only 4.6 but it is the lowest I've been and its late at night with no more meals for hours so its a bit scary. I hope I handled it properly. I went ahead and had my long term Insuin dose before bed as that take hours to act and I also had one serve of Carbohydrate. I'll check later then go to bed
I thought I would take the dog out for his last chance before bed and he went walkabout to the neighbours! I had to walk across the field in the dark, whispering his name. Of course its dead still tonight so I didn't want to wake any of the neighbours by yelling. My whistle is so weak that it works a treat in this situation as he can hear it but its not loud. Anyay he came back and now I am fully wide awake and slightly anxious So thought I would blog.
My levels have smoothed out even more since being home and they have dropped into the taget range and are approaching normal. 4 is the bottom of the normal scale. My alarm goes off at 3.9 and 2 is dangerous. So to come from an average of 9 to 4.6 is an eye opener but not terrible.
It's propbaly safe to go back into the blood testing waters so will sign off now
more later
Chris
Monday, August 25, 2014
Friday, August 22, 2014
Latest news
I'm home in Hervey Bay!
docs got my levels close to balanced and not spiking up and down so was able to get out this morning. Flew home at noonish and now im sitting with Floydd and Bluey enjoying (?) the rain. Drop is on and we are making Pumpkin soup cause its that kind of day.
So to bring you up to date. I'm a full on insulin dependant diabetic until futher notice. I'm going this direction beacuse they might be able to figure out tablets for me but by the time they get it sorted I'll be going back on Prednisone and that messes up the doses so I might as well go on to insulin now as I will have to in a few weeks anyway. I have insulin pens and a new test meter that has a log book. The big change is that I'm really going to have to watch my food. I need to be eating consistently the same amount of carbs at the same time and take my insulin at every meal and before bed at the same time. That may be tricky but I have to do it,
They are stilll looking at my Potassium levels and I had to take this concoction that tastes and fell like drinking half water half chalk. Blood test Monday shoud tell us if the crap drink worked.
I have to do this all again in 4 weeks
I swing from the Cyclophosfomide to Prednisone and it starts with three days of Intravenous Pred and the Endochronologist Dr, Who wants toe be around to halp me fix the new levels. of insulin. I'll have to be in hospital from Sept 16 to and including the 19th.
In the meantime my GP and I will be watching my tests and adjusting little bits to get me sorted till Sept.
more later
Chris
docs got my levels close to balanced and not spiking up and down so was able to get out this morning. Flew home at noonish and now im sitting with Floydd and Bluey enjoying (?) the rain. Drop is on and we are making Pumpkin soup cause its that kind of day.
So to bring you up to date. I'm a full on insulin dependant diabetic until futher notice. I'm going this direction beacuse they might be able to figure out tablets for me but by the time they get it sorted I'll be going back on Prednisone and that messes up the doses so I might as well go on to insulin now as I will have to in a few weeks anyway. I have insulin pens and a new test meter that has a log book. The big change is that I'm really going to have to watch my food. I need to be eating consistently the same amount of carbs at the same time and take my insulin at every meal and before bed at the same time. That may be tricky but I have to do it,
They are stilll looking at my Potassium levels and I had to take this concoction that tastes and fell like drinking half water half chalk. Blood test Monday shoud tell us if the crap drink worked.
I have to do this all again in 4 weeks
I swing from the Cyclophosfomide to Prednisone and it starts with three days of Intravenous Pred and the Endochronologist Dr, Who wants toe be around to halp me fix the new levels. of insulin. I'll have to be in hospital from Sept 16 to and including the 19th.
In the meantime my GP and I will be watching my tests and adjusting little bits to get me sorted till Sept.
more later
Chris
Tuesday, August 19, 2014
What do you do while you are waiting for balance
You talk to to your sister on facetime/skype. She can amuse you by putting her SIM into her new phone. Normally a task for a five yearolds fingers and eye sight but as we get on a bit it becosming entertainment. the actually funny part was holding up the SIM carrier to the camera and making it face your face and then launching into Grover's "near" and "far". I nearly choked I was laughing so hard, thanks Melissa (two s's one ele, two s's one ele, I might actually have this spelling thing now).
You can marvel at how many doctors travel in packs now. My Endo team is a pack of three. clearly I scare the Big Boffin because yesterday his team was one other today he walks in with three others!
The staff here are all in uniforms blue for cleaners, blue stipes for nursing, red strips are pharmaphcy I think. even the doctors are in a uniform of sorts long sleeve dress shirt pipstripes, tie, dress pants, the female doctors are a breath of fresh air. in vaious outfits but all conservative business dress.
You can have coffee
and write this blog entry.
You can marvel at how many doctors travel in packs now. My Endo team is a pack of three. clearly I scare the Big Boffin because yesterday his team was one other today he walks in with three others!
The staff here are all in uniforms blue for cleaners, blue stipes for nursing, red strips are pharmaphcy I think. even the doctors are in a uniform of sorts long sleeve dress shirt pipstripes, tie, dress pants, the female doctors are a breath of fresh air. in vaious outfits but all conservative business dress.
You can have coffee
and write this blog entry.
more later
chris
Monday, August 18, 2014
A little education goes a long way
So had a big day of visits and it my not be over yet.
The Big Boffin and the Nephro team w in this am and is happy with how I'm going no news about when I get to leave.
Next throught the revolving door is the Nurse Educator. She was very nice and I got presents! I got a new you beaut test meter, a new bag of misc stuff and my own insulin! She talked about a ton of stuf and she is back tomorrow to see how much soasked in. I did test reading for her and I got to inject my lunch time insulin and its going swimmingly.
Bluey took a hike after my lunch as she has a meeting tonite and its looking like I'mhere for at least a day or two.
Next through the door was the Endochronologist team, Dr. Who and her resident and her student.They reviewed my chart and I'm still too high and not fully balanced yet and told me that I was probably here till Thursday. They all look at my feet and pronounced I need to see the Podiatrist.
I got a visit form the Pharmacist sho was trying to make sense of my meds new and old.
I'm wondering if there are hidden camera and this an episode of "Guniness book of world records" This the episode where the team surrounding our hapless patient don't know that we are going to see how many doctors we can get in on one patient/one visit.
Anyway I just finished with the Dietician. She took my history and gave some tips but is coming back tomorrow to spend more time and give me more info.
Wow Lots of docs and lots of info. I need to stay longer just to be able to get it all in.
more later
Chris
The Big Boffin and the Nephro team w in this am and is happy with how I'm going no news about when I get to leave.
Next throught the revolving door is the Nurse Educator. She was very nice and I got presents! I got a new you beaut test meter, a new bag of misc stuff and my own insulin! She talked about a ton of stuf and she is back tomorrow to see how much soasked in. I did test reading for her and I got to inject my lunch time insulin and its going swimmingly.
Bluey took a hike after my lunch as she has a meeting tonite and its looking like I'mhere for at least a day or two.
Next through the door was the Endochronologist team, Dr. Who and her resident and her student.They reviewed my chart and I'm still too high and not fully balanced yet and told me that I was probably here till Thursday. They all look at my feet and pronounced I need to see the Podiatrist.
I got a visit form the Pharmacist sho was trying to make sense of my meds new and old.
I'm wondering if there are hidden camera and this an episode of "Guniness book of world records" This the episode where the team surrounding our hapless patient don't know that we are going to see how many doctors we can get in on one patient/one visit.
Anyway I just finished with the Dietician. She took my history and gave some tips but is coming back tomorrow to spend more time and give me more info.
Wow Lots of docs and lots of info. I need to stay longer just to be able to get it all in.
more later
Chris
Sunday, August 17, 2014
Its a bad day for the dessert pocket.
Friends please bow your heads for a moment of silence. At 2:00pm on August 15th 2014 the dessert pocket was sewn shut! Its been nailed closed. Its been filled with rocks. There will be no desserts eaten for some time.
We have a new player in our little game of hormones! Please welcome Dr Who to the arena. No, nothing to do with science fiction she just has big glasses and an open expression. Dr Who is an endocrinologist and will be managing my diabetes. She was very straight forward and didn't say directly but indicated I had been fooling myself about how well I was handling my sugars. Yes there were unusual circumstances (medications etc) but I need to get a grip RIGHT now. So I'm going to be on insulin once a day long acting and insulin three times at meals short acting with at least four readings a day on my meter. For the foreseeable future. Maybe when I get finished the kidney treatment in 6 months we can look at a tablet solution.
Yep I am well and truly a diabetic and until I get my own insulin sorted I won't get out of here. Nurse educator is due tomorrow to give me my pen and .... education. Dietician is due tomorrow to slap me about portion size.
I still have one little issue and that's my pulse, its in the forties. And for those that are healthy it would be a great thing, a sign that you are fit. for me it means something else is not quite right. They have dropped my second blood pressure med and are watching the pulse and every time I get my obs taken the nurses are a bit freaked but do that " nothing to worry about here side ways dance" all way back to their pals at the nursing station to see what to do. Then they come back with a really relieved look on their face. Or I could be wrong. anyway that's more of what they want to make sure of before they let me go.
So I think I won't be going home tomorrow and I may be on track to go home on Tuesday
Bluey is going home to HB tomorrow because she has a meeting tomorrow night. I may get the train home or she may come back depending on when I actually get released. I'm due back at ICON on Friday anyway so who knows.
More later from the land that dessert forgot. Or is it desserted
Chris
We have a new player in our little game of hormones! Please welcome Dr Who to the arena. No, nothing to do with science fiction she just has big glasses and an open expression. Dr Who is an endocrinologist and will be managing my diabetes. She was very straight forward and didn't say directly but indicated I had been fooling myself about how well I was handling my sugars. Yes there were unusual circumstances (medications etc) but I need to get a grip RIGHT now. So I'm going to be on insulin once a day long acting and insulin three times at meals short acting with at least four readings a day on my meter. For the foreseeable future. Maybe when I get finished the kidney treatment in 6 months we can look at a tablet solution.
Yep I am well and truly a diabetic and until I get my own insulin sorted I won't get out of here. Nurse educator is due tomorrow to give me my pen and .... education. Dietician is due tomorrow to slap me about portion size.
I still have one little issue and that's my pulse, its in the forties. And for those that are healthy it would be a great thing, a sign that you are fit. for me it means something else is not quite right. They have dropped my second blood pressure med and are watching the pulse and every time I get my obs taken the nurses are a bit freaked but do that " nothing to worry about here side ways dance" all way back to their pals at the nursing station to see what to do. Then they come back with a really relieved look on their face. Or I could be wrong. anyway that's more of what they want to make sure of before they let me go.
So I think I won't be going home tomorrow and I may be on track to go home on Tuesday
Bluey is going home to HB tomorrow because she has a meeting tomorrow night. I may get the train home or she may come back depending on when I actually get released. I'm due back at ICON on Friday anyway so who knows.
More later from the land that dessert forgot. Or is it desserted
Chris
Saturday, August 16, 2014
that's better
So I rushed with Bluey down to the Hospital that lies on greenslopes. Unit 33 bed 36. we got here at 10:30 into room around 11:30 didn't see the doc until 1:00, got my canulla at 2:00, got insulin at 3:00, ECG at 4:00, obs every two hours, Blood sugar test every two hours, weight chair at 6:00. ........
Yep this is the place to get some rest!
I did get some sleep but it was in chunks betweeen other stuff.
How did this happen? Well, as you know I've been put off from trying to fix my bone marrow while we go on a quest to fix my kidneys. and we started with cyclosporin my immune suppression of choice and that wasn't working, so we moved on to big lashings of Prednisone alternating with Cyclophosfimide. and we got into the first shot of Pred and it set my sugars off and even when we tapered it off my sugars stayed high so in my blood test on Thursday the blood sugar was at 40.
Now you the average punter have a blood sugar level between 4 and 6. the Melissas and Mishs, Lisas and Lous, Larses and Carlas are close to the 4 level I think. So to think that others are 2 or 3 points above that and I'm 10 times that. You get the picture. Its really really bad. Damage starts to happen at that point. We think its not happened yet but I'm glad we are getting on top of it.
Also my Potassium is too high, my sodium is too low, my creatin is too high, my protein in the urine is still to high..... I'm out of balance. the Big Boffin was bit concerned and indicated that if I was in his office instead of at the other end of a Skype call he's be putting me into hospital to get things sorted. We didn't want to go into the local so we made dinner, ate it and hit the road. So here I am at the servo getting my tyres rotated and balanced.
I just got my second jab of insulin.
My body was trying to get used to high sugar levels, peeing a LOT, other really antisocial behaviours, hormone and steroid changes etc. So my climb back down the sugar tree is going to be uncomfortable I'm told. and I do feel a be woozy right now but its still better that eye damage or extremity damage, cardiac vascular damage. I'm going to be on insulin for a while at least six months for the kidney repair treatment and maybe longer. And since the treatment involves on and off Prednisone I'll be juggling the insulin levels to try to balance things out.
Meanwhile back at the bone morrow ........what's goin on? I don't have a clue.
More later from "drama's are us"
Chris
Yep this is the place to get some rest!
I did get some sleep but it was in chunks betweeen other stuff.
How did this happen? Well, as you know I've been put off from trying to fix my bone marrow while we go on a quest to fix my kidneys. and we started with cyclosporin my immune suppression of choice and that wasn't working, so we moved on to big lashings of Prednisone alternating with Cyclophosfimide. and we got into the first shot of Pred and it set my sugars off and even when we tapered it off my sugars stayed high so in my blood test on Thursday the blood sugar was at 40.
Now you the average punter have a blood sugar level between 4 and 6. the Melissas and Mishs, Lisas and Lous, Larses and Carlas are close to the 4 level I think. So to think that others are 2 or 3 points above that and I'm 10 times that. You get the picture. Its really really bad. Damage starts to happen at that point. We think its not happened yet but I'm glad we are getting on top of it.
Also my Potassium is too high, my sodium is too low, my creatin is too high, my protein in the urine is still to high..... I'm out of balance. the Big Boffin was bit concerned and indicated that if I was in his office instead of at the other end of a Skype call he's be putting me into hospital to get things sorted. We didn't want to go into the local so we made dinner, ate it and hit the road. So here I am at the servo getting my tyres rotated and balanced.
I just got my second jab of insulin.
My body was trying to get used to high sugar levels, peeing a LOT, other really antisocial behaviours, hormone and steroid changes etc. So my climb back down the sugar tree is going to be uncomfortable I'm told. and I do feel a be woozy right now but its still better that eye damage or extremity damage, cardiac vascular damage. I'm going to be on insulin for a while at least six months for the kidney repair treatment and maybe longer. And since the treatment involves on and off Prednisone I'll be juggling the insulin levels to try to balance things out.
Meanwhile back at the bone morrow ........what's goin on? I don't have a clue.
More later from "drama's are us"
Chris
Friday, August 15, 2014
rrush to the south
we are in the car heading to green slopes hospital in brisbane.
my results from yesterday are shocking and I'm not feeling significantly better today so the big boffin wants me on a drip so we can mellow out mylevels.
right now my Potassium is high my sodim is low my creatin is 180 and my sugar yesterday was 40! that's ten times normal!
my results from yesterday are shocking and I'm not feeling significantly better today so the big boffin wants me on a drip so we can mellow out mylevels.
right now my Potassium is high my sodim is low my creatin is 180 and my sugar yesterday was 40! that's ten times normal!
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