okay I have a lot to cover since i've been holding off blogging.
the treatment I was on is not workinf despite adjusting my meds a couple of times. Doc Shoozenbootzen has told doc Boffin he should treatment like someone off the street and go for it with the new treatment.
I take this to mean that the Myleo Fibrosis is not as big a prioity as getting my kidneys working properly again. We have worked so hard over the past two years trying to get my immune system ramped up through interferon and later my brothers lymphocytes and now they are talking about slaming my immunesystem down with a "Chelelli Protocol" or something like that. but the bottom line is slaming the immune system at a marrow level rather that the blood level they were trying already.
So its worrying that we are abandoning the attack on the fibrosis, its worrying that I have crap kidneys and its worrying that the new slam regiment starts with 50mg of prednisone. now you may remember the this hormone makes me hyper and ive been on 15 mgs for the past month and im still friends with everyone. I even did 3 days of 50 mgs as part of fixing my knee. the new treament is 50mg a day for 30 days then a chemo drug (cytotoxin) for a month then repeat twice more. So its a 6 month paln that involves drugs I don't like.
I'm not happy about this but as always Im happy about the great doctors I have and I'm happy to be trying fix myself but geeze louise ....
more later ...obviously.
Chris
