I'm more than 5 yr out from bone marrow transplant. See other blog for the rest

Saturday, April 20, 2013

More of the same...all good


So it's been 16 weeks since my last transfusion.

Still a mystery but no ones talking about it any more just "your bloods are excellent" then on to other topics. I, on the other hand, would like to know why.... It's the geek scientist in me I guess. I just have to be happy with "Every patient is different...".

So I got my third batch of DonorBro cells; this was x times 9 concentration.

 I have a cold, the second in 4 weeks and I had gout last week but nothing connected to GVHD.
----- pop quiz :What does GVHD mean? Yes that's right Graft versus Host Disease. Where the new immune system in this case bolstered by the Donor Bro's Lymphocytes attacks my own body because it sees my body as foreign to its self. Also in this case we hope that the immune system will rear up and attack the fibrosis inside my bone marrow. ------

So no sign of that yet.

In unrelated news the downstairs addition has plumbing roughed in and electrical due next week. Plaster boarding the following week then water proofing, tiling, painting, final fit of elex and plumbing and its done.

More later
Chris
PS I just miss spelled my name hris and it auto corrected it to Harris not Chris weird eh?

Things are a burbling....

Okay lets see its been 15 weeks since my last transfusion.

two weeks ago nearly I got told my third batch of the DonorBro Cells were getting postponed because my "kidneys were crap" AGAIN. (good now though) so I of cousrse didn't pay much attention because sometimes I'm just like other humans and I'm a BAAAAAAAAD Patient. Anyway I didn't twig to what else may happen so I worked at rehydrating but maybe not fast enough.

I get to working out side and forget to drink water, I take breaks and drink.... but around here at my sweat rate, you have to drink every 10 minutes or so. Anyway...

The week after on the Thursday I start to get a pain in my foot. Gout brought on by dehydration I guess but still hurts so I'm hobbling around on more drugs. Saw the local Doc and sawThe Physio. My Physio is this tiny lady who can lay  a giant man to the ground with one or two fingers applied in the right spot so I was surprised at how gentle she was. It s still hurt like freaking hell but she was pretty gentle..... for her.

Staring to feel better now and that's good as we are off to