So its been 7 weeks since my last confession ...opps I mean my last transfusion. and we got the latest blood test results last night about 6:30 PM from the the hardest working practise nurse in the business.
She is really nice...... What?.... You don't want to hear how nice she is, you want the results Right NOW?..
Okay so she is hard working......
Just kidding.
120!
Yep that's not DOWN.... that's not even EVEN...... that's UP from the time before. I am seriously making my own cells. Wahoo!
That is all
more later
Chris
Tuesday, February 19, 2013
Sunday, February 10, 2013
Did I tell you......?
I got my results on Friday ....the results from the blood test done before the donor Bro's cells went in..... my regular results....They were at 116!!!! That's 5.5 weeks with NO drop in cells. Do you know what this means?
It means that since the blood cells are always dying off and being replaced in a normal person you are always making new cells so that you levels are relatively the same from week to week. My plateletts are up to 200 from 25 when I was getting off the interferon. And I have been consistently needing red cells for 9 or 10 months now. The usual thing was a transfusion, then in a week it might drop to 115/110 then down to 110/ 105 a week later then by the time I got to Brisbane after 4 weeks it would be at about 90 once it was as low as 79. But not recently. I have been at 114 to 116 for 5.5 weeks with out a transfusion!!!! So weird is this that Doc Shoozenbootzen did a BMA Bone Marrow Aspiration (dig a trench in your hip bone and use a garden spade to remove a small sample) and my Fibrosis (cancer) is still there, not reduced. So even though the fibrosis is still there and it reduces my ability to produce red cells I still managed to produce them??? Strange days indeed.
more later
Chris
It means that since the blood cells are always dying off and being replaced in a normal person you are always making new cells so that you levels are relatively the same from week to week. My plateletts are up to 200 from 25 when I was getting off the interferon. And I have been consistently needing red cells for 9 or 10 months now. The usual thing was a transfusion, then in a week it might drop to 115/110 then down to 110/ 105 a week later then by the time I got to Brisbane after 4 weeks it would be at about 90 once it was as low as 79. But not recently. I have been at 114 to 116 for 5.5 weeks with out a transfusion!!!! So weird is this that Doc Shoozenbootzen did a BMA Bone Marrow Aspiration (dig a trench in your hip bone and use a garden spade to remove a small sample) and my Fibrosis (cancer) is still there, not reduced. So even though the fibrosis is still there and it reduces my ability to produce red cells I still managed to produce them??? Strange days indeed.
more later
Chris
Wednesday, February 6, 2013
Cells are in
I had the injection of Lymphocytes this morning. They required that I have a whack of premeds...Hydrocortosone and Phenurgen and panadol, in case I had a reaction . All that happened is I got high and drowsy and stupid. Then they brought the cells in an no reaction on the visible scale.
I wonder if the Donor Bro was disappointed. He might have been hoping for the little cells taking on the Fibrosis cells in an epic battle of turf wars... where the battle ground gets torn up and I twist and turn and flip over from the action going on inside.
Maybe I should read less epic Scifi?
Anyway we just went out for the Donor Bro's pick of Korean for our last supper together this trip. He wants to play down the 'hero for doing this... chit chat' but does want other people to know that it is relatively easy to make this donation and to make a stem cell donation and that many others should be on the register to donate.
We got interviewed for the Brisbane Courier - Mail in the Parallel Lives section (weekend?) and they sent out a photographer this morning. All the nurses were walking by wondering who the celebrities were. We didn't have the heart to say 'nobodies'. Anyway it looks like it is going in the Sunday Mail newspaper Bluey has found out on the inter web.
What this guy beside me is doing looks good so ...
We travel home to the red dog and the gardener tomorrow and more work under the house.
more later
Goodnight
Chris
I wonder if the Donor Bro was disappointed. He might have been hoping for the little cells taking on the Fibrosis cells in an epic battle of turf wars... where the battle ground gets torn up and I twist and turn and flip over from the action going on inside.
Maybe I should read less epic Scifi?
Anyway we just went out for the Donor Bro's pick of Korean for our last supper together this trip. He wants to play down the 'hero for doing this... chit chat' but does want other people to know that it is relatively easy to make this donation and to make a stem cell donation and that many others should be on the register to donate.We got interviewed for the Brisbane Courier - Mail in the Parallel Lives section (weekend?) and they sent out a photographer this morning. All the nurses were walking by wondering who the celebrities were. We didn't have the heart to say 'nobodies'. Anyway it looks like it is going in the Sunday Mail newspaper Bluey has found out on the inter web.
What this guy beside me is doing looks good so ...
We travel home to the red dog and the gardener tomorrow and more work under the house.
more later
Goodnight
Chris
Tuesday, February 5, 2013
not the news we hoped it would be.
So the hunter trip was great and we tasted lots of wines then we picked up the Donor Bro and I had my Bone Marrow aspiration. Couldn't have it on the other side so its the right side again its all healed by now a week later.
Got the results on Thursday. There was no indication that the fibrosis in my marrow was reducing so no spontaneous remission. boooo. oh well on to Plan B.
What's that dear reader? Why did I have higher blood counts? Why were my counts higher then before the Interferon? NOt sure. Doc Shoozenbootzen says that not all the cells came unmasked after the interferon stopped at the same rate so the red cells just started up but later then the others. He didn't say my hard work theory was wrong just unproven.
So we are back at the Royal Brisbane and Women's Hospital to watch my brother give his Lymphocytes and later today I get shot up with them. I must stop here for a minute and remind the reader that there is an "and" in the hospital name. I am not in the Women's Hospital but the Brisbane AND Women's Hospital.
So will go up later and check on the Donor Bro but blogging for now.
Oh we met a lovely lady and gentleman last night. I'll call them Mrs Sparkles and Mr. Not Retired from WA. Wonderful people so kind and empathetic they run the Honeymoon Hill B&B in the Margaret River and you must go out and see them. http://www.honeymoonhill.com.au/about.html.
more later
Chris
Got the results on Thursday. There was no indication that the fibrosis in my marrow was reducing so no spontaneous remission. boooo. oh well on to Plan B.
What's that dear reader? Why did I have higher blood counts? Why were my counts higher then before the Interferon? NOt sure. Doc Shoozenbootzen says that not all the cells came unmasked after the interferon stopped at the same rate so the red cells just started up but later then the others. He didn't say my hard work theory was wrong just unproven.
So we are back at the Royal Brisbane and Women's Hospital to watch my brother give his Lymphocytes and later today I get shot up with them. I must stop here for a minute and remind the reader that there is an "and" in the hospital name. I am not in the Women's Hospital but the Brisbane AND Women's Hospital.
So will go up later and check on the Donor Bro but blogging for now.
Oh we met a lovely lady and gentleman last night. I'll call them Mrs Sparkles and Mr. Not Retired from WA. Wonderful people so kind and empathetic they run the Honeymoon Hill B&B in the Margaret River and you must go out and see them. http://www.honeymoonhill.com.au/about.html.
more later
Chris
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