I'm more than 5 yr out from bone marrow transplant. See other blog for the rest

Saturday, November 29, 2008

Hello, another rainy day day in paradise

yes it is thundering a bit but it is very hot with very high humidity. yesterday we had a nice wind that kept things cool a bit but not today.

Its Saturday Bluey is on her computer doing Uni work. I'm down loading new updates and talking to you.

Okay I just found out that my messing around adding the subscribe thingy to the foront of this blog caused my download to crash so its starting again...oh well.

Doc Shoozenboots called me today. he was due to talk to me last Friday (not yesterday) but when he didn't call I presumed that things were find with my interim blood test. But he called today to say my test was fine but that I was to drink more water. This was a scream as I was on my way in to Joyce's work to pick her up and GET A DRINK OF WATER!  Weird eh?

Anyway I seem to have settled a bit with the Prednisone and am still hyper but am trying real hard not to succumb to the irritability part. I even had a very streesful day on Thursday and kept it together very well.

I haave been organizing the school annual used computer sale and this time we had 8 laptops going out at 100.00 each, yes that is a good price and no you can't get one. I had heard from several people that they were going to line up earlier than the 8:oo amm start time so came and hour early only to find 20 people in line. Apparently the line started at 4:30 am!  I had prepared cards with numbers one to eight so that I could relieve people as to the outcome once the sale started. We all looked at each other and I thought it would be okay to start the sale since anyone coming later would not be getting a laptop any way. So in 40 minutes I had sold 8 laptops and 15 desktops! We had achieved our goal of unloading the old out of warranty units with a minimum of labour! Wildly successful. But..... its not just about being fair it about being seen to be fair! I copped a bit stick by starting early but when I got a chance to explain that the OUTCOME of the sale was determined by all those people lined up early and not any thing I did  everyone seemed cool.  In fact one mother of a disappointed daughter challenged us to work out a way to reduce the angst even more, meet our requirement of being easy, make it totally transparent, and even see if we could get some of the computers into the hands of parents and kids that may have trouble even getting the 50.00 or 100.00 we were charging.  She even offered to kick in for one next year. 

Watch this space for future developments on 'Comps for Kids' the foundation!!!!

I'm pretty pumped about this idea but that could just be the chemical talking ;-)

more later
Chris


Sunday, November 23, 2008

Hello, hello...... is this thing on?


Yes I know I have used that old joke before but sometimes I just can't help myself.

Yep its been months and months since my last entry. Sorry life got in the way. It is still in the way but I've been feeling like I need to blog so here  goes.

It is full on summer here now. Its hot and lately very sultry with storms in the late afternoon evening. Today, Sunday, it was a bit cooler then the last few days and nice and sunny and dry with a great wind that was just refreshing.
Bluey and I and Chilli and....Floydd went down to hear Gene play at a small Music In the Park gig. It was an activity for community members that don't get out that often organized by a staff member of Joyce's. 

Gene was great but Floydd was over taken by the joy of it all and the fact that I haven't learned his language yet and he peed all over the foot of a friend that was sitting beside me visiting while we listened to the music. I was mortified. She's such a great lady she just laughed but how bad is that. We don't blame Floydd at all we just kept him close on the leash for too long. Lesson really learned. 

Floydd is a rescue dog from the firing squad at Gayndah he is very charming and polite and very well trained . He is smart smart smart. We don't get why he wasn't snapped up but a connection to Jo took him even though she knew she couldn't keep him ( She all ready has 2 dogs, three cats, five kids.... you do the math) so Jo got him and she knows I've wanted a border collie for a long time.  He's been here two weeks but he just passed probation, Chilli was given veto power and it took her a little time to welcome him in but she has now so he's here to stay. 

Bluey is getting cranked up with fundraising to finish off the building fund it looks positive  for a construction start this coming year and maybe even finish before the end of 2009 or early 2010! i'm helping with campaign as well.

I'm dong a shave campaign again but I plan on shoving my two newest recruits Tamika and Erin to the fore. They are two student leaders in the community that both had mentioned to a Community worker that they wanted to shave this year and they are both excited about helping with the campaign and maybe taking it over for the following year. We are all working very hard to get a number of smaller satellite  shave/color events going in the schools this year and we are identifying students in each school already. Stay tuned.

I'm doing Lighting consultation on a Production of Wizard of Oz at the Brolga and just got invited to do the Lighting Design for hamlet at the local  little theatre, Z-PAC. They have got some new equipment and the play is a challenge but its one that could allow a great deal of creativity in the design. More on that later. 

I've been meaning to do some classes for young folk on lighting and sound and I may see about combining this show with that idea. More on that later.

So its probably a good thing that I'm on a new drug the side effects, of which, include increased hyper activity! Yep  I'm on Prednisone (oh you have to google this one).

I just had a look back at my blog because I thought I had told a story about Prednisone way back then. I can't find it but the story is that the main Hospital Registra was concerned about my weird behavior over Neutripeno Man.  You know where I dressed with my undies over my pj pants and my dressing gown as a cape......you know the super hero that is saving the world one neutrapenic at a time beacuse due to an industrial chemo acident he has way, way too many Neutriphils himself .... yes that what the Registra was worried about,.... was there a drug reaction to explain this hyper activity?... and aparently Shoeszenboots said "No that's just Chris, but God help us if we have to put him on to prednisone. 

Ta Da ...He's back!  That smooth talkin. jive walking energy junkie with the wakefulness and a word about everything. Its the newly created Prednisone Boy. 

Anyway I'm already feeling hungry and having to watch my food, I'm way too in tune with the cosmos and although Joyce sees it differently, I only remember getting irritable when Joyce talks about shooting Prednisone Boy - to get her man back. Apparently it has mild personality altering effects. What?.......uhuh.....uhuh........uhuh ... got it. It has huge spiked personality effects mostly to do with the areas of  getting along with humans that I am cohabiting with.   I wish we could pick and choose our symptoms but ....! Bluey has to be fair on this though, I have made her laugh so hard she has shorted a couple of times. 

Okay, why am I on this new drug? Because my fat ankles were not responding to laysics to get the water out. I have a mild form of GVHD in the skin of my ankles that leaves them spongy so I'm starting big and then I get weaned down until they still control the GVHD but reduce the sideeffects. 

My friend Jerry  with the heart transplant is only on 7 mg a day, the husband of my PhysioTherapist is down to 10 mg this go round for his kidney transplant and I'm on 25 mg a day. Perhaps Bluey has a point.

Anyway in two weeks I get to see what's what at the doctors. 

I've been writing for a while here so I'm going to sign off and recollect on stuff I saw in the old blog' s
a link to lists..... Principles/parables of my life - a list! March first 2007
PS you can check out Neutripeno Man in blog on FRiday March 23 entry.