See my new hair is curly and darker brown than before. Weird eh!
I saw Schoozenboots on Friday and he's generally happy with me. Except my liver numbers have gone high again and he's wondering if I just drink too much or if I'm getting GVHD, or if we dropped the immunesuppression drug too much last time sooooooo i'm on a part of a tablet more of the drug and I have decided to quit drinking again and then we will see in two weeks what's what. I don't have to go down to Brisbane again but I do have to get a blood test locally. Then we will talk by phone.
He did a bone marrow biopsy agian, my 6 monthly one. They are getting easier each time; i guess I'm relaxing. Although Joyce got to sit in and watch this time. She said I told him "it's hurting, its hurting" and he just kept going and turned to joyce as he shook my butt around drilling into me, "its okay he won't remember". I don't remember the pain but I remember saying it to him.... but I was so out of it I don't care. I guess I'll get the results down the road. It took almost a month to hear back last time.
I have to do my 6 month tests at the hospital; lungs, heart, xray etc in a few weeks.
I also had a skin appt this time and guess what, I do have the much rarer x-linked Icthosus (just means fish scales and I got it on my mothers DNA). Its no news for me just dry skin in the winter but if I had a daughter she would have longer labor if she was having a boy, and she should check his testicles to see if they drop properly. There is a slightly higher incidence of testicular cancer with this condition so I guess I can look forward to a much closer relationship to my GP from now on ;-) I don't remember Rick ever complaining of dry skin but you might want to look into it Bro.
-------Warning science geek stuff coming! Just skip the next parargragh if you aren't in to it.
My DNA has a bit of missing code at one of the skin chromosomes which means I don't produce a particular ensyme that allows the fat in my skin to change and release the dead skin cells so they stay on and make the scally look. The other problems come because often there are other "dropped" bits of information on other chromeosomes on either side of this chromosome and its in the sex and testes areas so that's why they keep an eye out for the NOT dropped ball! I don't get any treatment just cancer checks more regularily.
Bluey is great. She's a bit busy at work these days, leading up to her AGM, and the funding for the new building is still not all in place and some folks are getting antsey.
We stayed at Bev's and got to see the Riverfire spectacular. They put barges on nine reaches of the river. A reach is the straight bit between the bends. On each of the barges and from a number of bridges and high rises in the CBD as well they put fireworks. They are all microwave linked and the whole thing is miles and miles of coordinated fireworks. The whole city was in our local bottle shop that afternoon and by that evidence i reckon there were a million party goers on the banks of the river last Saturday! Bev's roof top patio has a stunning view of the bigest bridge and two of the barges so we had a great view. She had a big open house and other neighbours in the building, her staff, friends and family including her terffic grandsons were there. It was a big time and lots of fun. The event starts with the local precision flying team, Military attack helicopters thundering up and down the river and the fire event starts with a pair of F111s doing a fuel dump right over our reach of the river. Seriously cool. You could feel the heat on your face and the sound sure gets the crowd going. Anyway we got up early this morning and came home so are having a relaxing day here.
The house plans are back at the draughtsman but I have to get a number of answers from my partners and from the steel house company as we proceed. We may not be starting to build in September but maybe by the end of October!
more later
Chris
